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Restless Leg Syndrome

Sleep Health | Last Active: Apr 1, 2023 | Replies (268)

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@suecreader

Interesting Lynn! This happens to me too when I take Benadryl.....many people don’t believe that it isn’t helpful for me since it makes them drowsy. I think it might go back to the fact that we are all so different, and some of us are sensitive to certain drugs and others are not. This is what makes dealing with RLS so confusing and complex, at least for me.

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Replies to "Interesting Lynn! This happens to me too when I take Benadryl.....many people don’t believe that it..."

@suecreader @lynnkay1956 Benedryl and drugs containing that chemical such as the PM drugs absolutely get my legs kicking and feet flapping. I understand this is Periodic Involuntary Limb Movement (PILM) which is connected to RLS but it is definitely different and very weird.

@lynnkay1956 and @suecreader LOVE to hear that someone else gets the opposite effect that Benedryl is supposed to impart! It "wires" me!!! Certainly cannot take it for "sleep"! I was taking Requip for the RLS, but as with you, had to start increasing the amount. So my dr switched me to Mirapex - which I thought would be the answer!!! For 10 days I had no leg movement! But then it began again, and am now increasing the Mirapex dosage! All the while I am taking gabapentin, and Tramadol, tho' only in the late afternoon and at bedtime. As with you, no alcohol or caffeine after 2 or 3 pm. Thinking of asking my dr about Neupro? Also thinking - what if ... one could alternate Requip and Mirapex? ...daily? weekly? monthly? Just a thought! I also have pain from spinal stenosis and/or neuropathy, so when you add the jumping around from RLS or PILM it becomes TERRIBLE!!! You dread evenings and night and would do almost anything (or take anything!) to get a decent few hours sleep! The Mirapex makes me sleepy, so it is wonderful to take at bedtime - however that effect lasts into the next day and I am afraid to drive or do anything that requires my full attention. What to do...