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@memere09

My hematologist would like my level to be about 600-700 but I am very happy staying under 1,000,000. the hydrea makes me extremely anemic and fatigued. I had a second opinion about 12 years ago with a specialist in Boston who said that as long as I don't have any other risk factors (other than being over 60) that staying under 1,000,000 is okay if thats where I feel my best. My platelets spike all over the place.

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Replies to "My hematologist would like my level to be about 600-700 but I am very happy staying..."

Hi there,
Thank you, for sharing your opinion. I was prescribed HU at 500х2 a day , after 2 weeks of taking it I had a severe reaction, chills and shakes with a very high temperature. Tried it again with a lower dose with the same reaction. I had to stop it. My numbers are just over a million. I feel fine without taking anything . Just baby aspirin once a day. They want me to try anagrelyde next. I am so hesitant to take it too. Side effects scare me. The major factor is that I am over 60.