@suecreader I just thought I would outline my routine in case it is something you could adopt.

I take 4000 IU of Vit D at bedtime. I am usually able to go to sleep and stay asleep, no RLS, for several hours -- sometimes as many as 4 hours. Then I am wide awake but still no RLS. If I cannot go back to sleep I first take a 100 mg cap of gabapentin and then about 10 minutes later, I take 1/4 to 1/3 of a 10 mg tab of Ambien. The Gabapentin stops the PILM and maybe RLS from kicking in as a result of the Ambien. This routine works for me. I am pretty careful about how much Ambien I take but every so often apparently my nibble was a bit more than usual and the foot flapping begins. But, then I fall asleep and either I no longer notice the foot flapping or it stops. The foot flapping is from PILM triggered by the Ambien, not from RLS although I think the two are somehow connected conditions.

I was not finding any of the Parkinson's drugs were good choices for me, including Requip. They made me absolutely ill. But this routine keeps me rested and sane. Some people will say I shouldn't take Ambien but my MD says it is fine if it resolves the sleep issue (I have had chronic insomnia which has continued to worsen since menopause). For me, this amount of Ambien just gets me back to sleep and I am then able to sleep for a sufficient number of hours that in total, gives me 7 to 8 hours of sleep a night.

You are in such misery from this awful syndrome, I do hope you are able to try this routine and have some success with it.