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Mysterious illness, the doctors don't know what it is
Hello everyone, something horrible happened to me at the beginning of October 2023 and I still haven't recovered from it. I followed a keto diet and ate only meat and drank very little water because even water started to disgust me from meat.
I started vomiting like crazy and threw up everything I would eat. Then I stopped the diet and went back to normal eating.
But I noticed that my legs were so STIFF as if they were in clamps, as if I had a band around the knee and lower legs that was squeezing me harder and harder. I tried to squat but I couldn't get up from the squat. The next day I could not get up from a sitting position.
I couldn't get up from the toilet. When I went outside, my legs were so weak that I couldn't walk up a single step. I could not cross the threshold. They were stiff and stood as straight as if they were made of wood.
That feeling that my legs were not mine was from my knees. I felt like there was some liquid inside, and the feeling in my legs changed when I touch my leg as if there was something inside.
The stiffness of the upper part of the foot and knees, as well as the stiffness of the lower legs, has lasted for a full 6 months, with the fact that now I can climb the stairs, and for the first 5 months I could not even cross the threshold.
I'm in Serbia and the doctors don't want to help me, they say it will pass it by istelf. I am 32 yeras old.
Swelling around the wrist and inability to move the fingers, stiffness of the roots of the fingers and bridge foot. Impossibility of changing and going down stairs. I had an MRI and I was diagnosed with Synovitis of the foot and ankle.
My rheumatism factor is 95 but ccp is negative. What disease do you think this is besides gout?
My foot was stiff for 6 months and my knees were even worse.
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HugInterested in more discussions like this? Go to the Autoimmune Diseases Support Group.
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P.S. Here is a link about gallbladder. If you have gallstones, you can have pain on right, left and center of your abdomen and across your rib cage. Btw…love you, too❣️❣️❣️😘 ~Dina
https://www.mayoclinic.org/diseases-conditions/amyotrophic-lateral-sclerosis/symptoms-causes/syc-20354022
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4 ReactionsP.S.S. Here is the gallbladder link. I sent the ALS link previously in error. You can read that, too, and your symptoms don’t line up with ALS to me.
https://www.mayoclinic.org/diseases-conditions/gallstones/symptoms-causes/syc-20354214
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4 ReactionsThank you sooooooooo much!!! You are such GREAT person❤️❤️❤️❤️❤️ You are help me so much !!! 🤗🤗🤗❤️❤️❤️❤️❤️
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2 Reactions@tia1 Welcome to Mayo Clinic Connect! I see that you’ve already gotten some helpful advice from other members! You do understand, I hope, that no one here on Connect is a medical person and they are only giving suggestions based on their own experience. Maybe start a written list of everything you think is going wrong, add dates, etc. make sure you also mention your keto diet as this could be part of the problem. Then, start with your primary care doctor, and get a good checkup. And, go on from there. Do you have any university medical centers near you? It would be a great place to go for help.
I hope you will continue participating in this discussion! Will you keep us informed about how you are doing?
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2 ReactionsI don't have a sense of what is going on. But what I can say, is this: there is hope, there is always hope.
I had carbon monoxide poisoning in 2003, with exposures to paint fumes and polyurethane. I was near death for 4 months.
I joined a bunch of online support groups. In those groups I met many people who had profoundly disabling illnesses and were very close to death and came back to much greater health.
So, if you persevere with research and effort, it is highly likely you will get more and more symptom reduction, learn more and more about what is going on. And within a bit of time, you will very likely be in a much, much better place than you are now.
I would ask your doctor what he/she thinks about work on the legs themselves. Massage therapy comes to mind. Perhaps water therapy (jacuzzi). Elevation of the legs...various kinds of movement work.
And, of course, hitting all the basic keys: Proper hydration, Proper nutrition, sleeping enough, etc. etc. etc.
There was a famous healing clinic in Dallas. They took on the most extreme cases. When interviewed, the lead doctor was asked, among the people who recovered most, what was the main characteristic they shared.
The doctor said, "they never stopped trying." True story.
Impossible problems frequently surrender to time and effort.
Take care now.
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1 ReactionGod Bless You! All of these restrictive diets are not good for everybody. I wonder too if the Keto Diet has triggered any of this for you? I did the high protein with almost NO carb diet and it did a number on me. I lost the weight quickly, but, I started with other problems. I am convinced that it threw me into thyroid disease. This program recommended sea salt and it has "0" Iodine in it. Our bodies need iodine. I talked to a medical professional and they said that it was very possible with the very low amount of carbs and fats I was getting it could have caused thyroid disease. I'm so sorry you are battling this. Praying for you.
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1 ReactionI agree. Really dangerously dehydrated Consuming strict keto is not good and decreasing water intake is not good.
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