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Restless Leg Syndrome

Sleep Health | Last Active: Apr 1, 2023 | Replies (268)

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@dizzydaisy

There has got to be a nerve (that is worthless) they can snip and make RLS go away. I fight this everyday and getting aggravated as over the years it just keeps getting worse, like the neurologist stated. I am contemplating a pain stimulator, as I have other aches too. I really doubt it works. I am also checking into Mayo’s RLS study. Desperately wanting help!

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Replies to "There has got to be a nerve (that is worthless) they can snip and make RLS..."

Hi @dizzydaisy -- Welcome to Connect. I'm glad you found us. I'm with you on snipping a worthless nerve if there was one. I think all them little guys have a specific job to do but sometimes they are damaged, broken or pinched and do all that "miss-firing' that gives us the pain. I'm tagging @barbarn who also has posted about RLS and using one of those gizmos to reduce or remove the pain.

@barbarn can you share how the TENS unit helps you with your RLS?

John

Fellow sufferers of RLS - everytime I sit down to relax my one leg goes crazy with pain and/or movement!!! Fortunately/unfortunately all my problems at this time seem to be localized on one side. I bought a little tens unit one day while shopping at Target - "impulse buying" at the extreme! But it's one purchase I LOVE!!! Made by Icy Hot,It has adhesive pads so you can place wherever you think you need the relief, but I have found that closer to spine is best for me. (It comes with decent instructions). It is battery operated, runs on CR2032 batteries. i do turn it on before I place it on my back as it's a little difficult to find and start with 'old' fingers. There are + or - buttons to push, I have found it necessary to push the + button several times to get it to where I can feel the electrical current. If you want less current push the - button, but for me I want all the current it has!! More drs need to know about this! I went to the Amazon site today and was amazed at how many different tens units there are for sale! And you can read the reviews there! And shop for the best prices!! I do take prescription meds, but when all else has failed, this little unit has saved me!!!

@dizzydaisy what study on RLS is Mayo doing?

Hi, @barbarn -- here is one currently enrolling Mayo Clinic study on RLS: https://mayocl.in/2KiIPWO

I totally understand your feeling of wanting to do almost anything to get relief. You probably already figured this out, but for me, as I get older my restless legs become more pronounced as well. I believe I had them as far back as when I was 10 or 11, but they were very intermittent and diagnosed as “growing pains“. I am now 67 years old, and have gone through a gamut of medications. Right now I am taking a transdermal patch called Neupro which I mentioned in a post to someone else...so perhaps you have already read about it there. It’s in the same category as Requip, but so far is providing much needed relief. Someone told me about it, so I asked my doctor. This is what is good about sharing ideas and hope for those of us with restless legs.