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Hello @pcka,
Welcome to Connect. Battling restless leg syndrome for 30 years sounds really frustrating, I am sorry to hear that.
We have a lot of conversations here on Connect about Stem Cell therapy, but most are centered around joints or Bone Marrow Transplant for treating hematological diseases. However, as a result, I have done my own research in to what Mayo Clinic is doing with Stem Cells. The following information is what I found out regarding a consultation service number Mayo Clinic has as it pertains to Stem Cell therapies:
Regenerative Medicine Consult Service Process
Transplant Call-in Center
844-276-2003
What to expect when you call the number:
– An employee will answer and ask the nature of why you are calling
– Say you are interested to stem cells for osteoarthritis or whichever joint ails you
– The employee will funnel your call to the appropriate coordinators from there
– For joint issues, you will be transferred to PMR (Physical Medicine & Rehabilitation)
– Appointment coordinators will ask more specific questions (inclusion and exclusion criteria)
– If you meet the criteria:
– You will be asked to send in your records and a doctor will look at it in a case-by-case basis
Important Notes to be Aware of:
– PMR is a busy practice, so wait times may exist but answers will be given
– If a treatment exists in the clinic for a diagnosis (i.e. Leukemia) stem cells are not offered
– Price is out of pocket
– Types of stem cell treatments offered are Bone marrow aspirate concentrate (BMAC) injections and Platelet rich plasma (PRP) injections. You can find more specific information on these types of injections here, http://mayocl.in/2AUIoAn.
If you'd like, you can feel free to call the number above and ask them the specific questions you have and they will be much better suited to answer your questions than I ever could be. If you don't mind me asking as my own knowledge is limited about restless leg syndrome, are Parkinson's pills regularly prescribed for this condition? If it is not too personal, are you also battling Parkinson's?
Replies to "Hello @pcka, Welcome to Connect. Battling restless leg syndrome for 30 years sounds really frustrating, I..."
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I have had RLS for as long as I can remember. It increased in severity after I had children. The first medication the doctors put me on was Requip which is a dopamine agonist and was originally used to treat Parkinsons. It is commonly used for RLS. After about 4 years, I started rebounding on that medication. It started making my symptoms worse and they were occurring earlier in the evening. I was afraid to go anywhere because I could not sit still. I tried Gabapentin for a while but it did not work for me. A new sleep doctor discovered I have had a recurring issue with iron deficency. Iron infusions have been a very helpful therapeutic. The last ten years I have also been on varying doses of klonopin. In addition I work with a naturopath on nutraceuticals for my adrenal gland and other hormones. They are helpful but I have never been to completely wean off meds. I also avoid all antihistamines because the sleep doctor told me they would aggravate RLS symptoms. I would rather deal with being congested than not sleep. I think everyone's journey is a little different. Find a good sleep doctor who listens and then try different meds and therapies that work for you.