Demylinating Sensorimotor Neuropathy vs./ or and Polyradiculopathy

Yikes...I went to the article and my eyes crossed! My overriding question is: What can we expect in the future due to the demyelination? All I get from my neurologist are vague non answers which makes me conclude that they don't know for sure and all the tests that they perform are being done to track our decline. Ugh. Anyone out there get answers about what to expect? I'd love to hear from you.

Yikes...I went to the article and my eyes crossed! My overriding question is: What can we expect in the future due to the demyelination? All I get from my neurologist are vague non answers which makes me conclude that they don't know for sure and all the tests that they perform are being done to track our decline. Ugh. Anyone out there get answers about what to expect? I'd love to hear from you.

Yikes...I went to the article and my eyes crossed! My overriding question is: What can we expect in the future due to the demyelination? All I get from my neurologist are vague non answers which makes me conclude that they don't know for sure and all the tests that they perform are being done to track our decline. Ugh. Anyone out there get answers about what to expect? I'd love to hear from you.

Hi @minfromtexas, My guess for the vague answers is they really don't have the answer. Here are a couple of references that are hopefully a little easier to understand on demyelination.

--- Demyelinating disease: What can you do about it?: https://www.mayoclinic.org/diseases-conditions/multiple-sclerosis/expert-answers/demyelinating-disease/faq-20058521
--- Demyelination: What Is It and Why Does It Happen?: https://www.healthline.com/health/multiple-sclerosis/demyelination.

My own personal opinion on progression is that it's better for our overall health to take it day by day, eat healthier and keep moving doing what you find brings you joy.

I think my gastroenterologist will recommend I have my gallbladder out since it is not working properly or sending enough bile to my small intestines to digest food (causes pain near my liver and could cause infection/inflammation due to trapped bile). I already had blood work, an endoscopy and ultrasound and the HIDA scan seems to confirm my gallbladder function disorder (which I believe is tied to autonomic dysfunction).

It is amazing how many problems can be caused by your CNS/PNS, especially if there is injury to the cervical spine/cord due to vertebral disk/joint degeneration. It makes sense that your body will have problems if your brain and body can’t communicate or coordinate well.

Hi Daily Hope,

I hope you are feeling some relief today.

I am more hopeful and wanted to share! I was so excited when I stumbled upon an old (2004) MRI with ‘limited view’ of the cervical spine!

Now I have more information for my doctor, albeit old. It shows there was something happening, not including several falls later…

This was about a year after I had a bad fall, then 4 subsequent falls a number of years later.

Showing disc bulging at C5-C6 and C6-C7 with a hemangioma of bone of C4. This with the nerve studies should be useful.

I read symptomatic hemangiomas ‘can’ cause severe neurological problems, while others are benign in nature. So, that was after a very brief Google.

I am printing the report. I’ll show the doctor with confidence request updated imaging. I am breathing a little easier about the appointment. I will be ready.

Is a epidurals effect immediate?

About two weeks ago I tried a light stretch (yoga) that was to help elongate the spine and neck. It was hurting after that. I had some weird sensations.

It’s decided. New movements will have to wait until I get back to physical therapy. They can show and tell me what moves will be okay for my spine and balance issues with new more thorough information.

If my primary does not order complete radiology, I will request again with neurologist for a complete picture.
I have to remember to request a referral for the specialist you suggested a consult with, orthopedic surgeon.

Radiology will take weeks if not a month. Maybe i can bite the bullet and plan for that specialist in advance of radiology. I’m sure he/she will also be scheduled out. I’ll try to coordinate all exams.

It’s amazing how we have to be steps ahead to get proper treatment. I’m going to see if my primary can coordinate my care. He’s the pro!

Have a great day. Hope it’s sunny where you are. It’s rainy and cool now. It’s supposed to warm up this week.
Spring is coming!

I love crocuses. When they bloom I know spring is around the corner.

💛

Hi Daily Hope,

I hope you are feeling some relief today.

I am more hopeful and wanted to share! I was so excited when I stumbled upon an old (2004) MRI with ‘limited view’ of the cervical spine!

Now I have more information for my doctor, albeit old. It shows there was something happening, not including several falls later…

This was about a year after I had a bad fall, then 4 subsequent falls a number of years later.

Showing disc bulging at C5-C6 and C6-C7 with a hemangioma of bone of C4. This with the nerve studies should be useful.

I read symptomatic hemangiomas ‘can’ cause severe neurological problems, while others are benign in nature. So, that was after a very brief Google.

I am printing the report. I’ll show the doctor with confidence request updated imaging. I am breathing a little easier about the appointment. I will be ready.

Is a epidurals effect immediate?

About two weeks ago I tried a light stretch (yoga) that was to help elongate the spine and neck. It was hurting after that. I had some weird sensations.

It’s decided. New movements will have to wait until I get back to physical therapy. They can show and tell me what moves will be okay for my spine and balance issues with new more thorough information.

If my primary does not order complete radiology, I will request again with neurologist for a complete picture.
I have to remember to request a referral for the specialist you suggested a consult with, orthopedic surgeon.

Radiology will take weeks if not a month. Maybe i can bite the bullet and plan for that specialist in advance of radiology. I’m sure he/she will also be scheduled out. I’ll try to coordinate all exams.

It’s amazing how we have to be steps ahead to get proper treatment. I’m going to see if my primary can coordinate my care. He’s the pro!

Have a great day. Hope it’s sunny where you are. It’s rainy and cool now. It’s supposed to warm up this week.
Spring is coming!

I love crocuses. When they bloom I know spring is around the corner.

💛

My bulbs are starting to bloom in Rhode Island! 🙂

So glad you are ready for next steps. You may get a more urgent appointment scheduled with the orthopedic spine specialist if you tell them you need a speedy assessment of potential cervical myelopathy. They should see this as an emergency and squeeze you into the schedule as a high priority.

Good luck!

Yikes...I went to the article and my eyes crossed! My overriding question is: What can we expect in the future due to the demyelination? All I get from my neurologist are vague non answers which makes me conclude that they don't know for sure and all the tests that they perform are being done to track our decline. Ugh. Anyone out there get answers about what to expect? I'd love to hear from you.