Connect
Comment receiving replies
Never had any type of gastrointestinal issues. Symptoms started slowly nearly three years ago. Today completely dependent on large water enema every few days. Loss sensation to go and peristalsis. Tried all medications, don’t work and horrible side effects. Every test shows colon not functioning. I recently found that my Microbiome is off the charts with Sibo, H. Polori and a crazy parasite. I’m on a strict elemental diet day 6. To date only option given is a total Colectomy. I’m so afraid especially not passing Manometry test three times ! I’m Still trying to get to the root cause. Pain, bloating fatigue, and this overwhelming unwell state has taken its toll and sucked any quality of life away… Can anyone share their diagnosis experience of colonic inertia ? Very much appreciated.
Replies to "Never had any type of gastrointestinal issues. Symptoms started slowly nearly three years ago. Today completely..."
@matchabell
I have colonic inertia. I was diagnosed 6 months ago. I have had chronic constipation my whole life but was managing. Now my colon is at the stage where it doesn't respond to medication except bowel prep. Which I have and can use when I need to. However it does dehydrate you and its not pleasant. The hospital are visiting today to show me how to use an irrigation machine. Not sure it will work very well. I am very tired have a lot of inflammation in my body, have blood pressure spikes and my filtration rate on my kidneys has dropped. I tend to think this is all attached to the same issue. I am going back to my surgeon soon and am having surgery. Not sure if I will be eligible for the surgery where the small bowel is attached to rectum or whether I will be having an illectomy. I totally sympathize with you all it is a very difficult condition to manage and the decision to have surgery was to have more quality of life. I wish you all the best.
Connect
I have chronic constipation symptoms, but have not been diagnosed. I am scheduled for second colonoscopy next month. I found this piece interesting. It seems I might need different tests and not a regular colonoscopy. I hope you get some good responses.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3348730/.
Here’s another piece:
https://iffgd.org/wp-content/uploads/159-Constipation-Colonic-Inertia-and-Colonic-Marker-Studies-1.pdf