← Return to Bone marrow transplants for CMML

Discussion

Bone marrow transplants for CMML

Caregivers | Last Active: Mar 13 9:34am | Replies (36)

Comment receiving replies
@katgob

I add that this Friday zoom meeting is with between 3- 8 women. We talk about God, turning our problems over to him and prayer and meditation as a daily use. A good friend invited a number of the women she felt would enjoy this topic and the new friends. This friend passed 1 year ago. We all speak with love about her.
I told them I had joined my good friends online support meeting and chat her to read my prior phone text please. In that meeting I chatted my need for caregivers to her.
Well, through a few texts over 4 hours, she called to say I could stay at her house. A blow up bed would be added to the house, so all 3 would have a space. Logistics would be figured out closer to my date of transfusion. She is 10 minutes from COH. She is my link to a few other ladies with extra rooms. If I need a week or two at each, that would work. I just thought about a bunco friend who I may ask to be on my list.
I figured it would be far less stress to stay with a few others and have them down on the COH form as the fourcthey request. I can wear masks at their home and they do keep their homes rooms clean.
I speak to the Dr. On the 5th so he may have an update from the donor on if and when he is available. I had spoken to the transplant nurse a few weeks ago and the social worker last week. Both of those are part of the transplant team.
My BC journey started in July 2021, chemo in August, removal of the tumor in Feb of 2023. Getting covid in Jan 2022 caused my surgery to remove the chemo shrunk tumor to be put off till Feb. A 2nd surgery till Dec, happened as I had a deep vein thrombosis, aka a blood clot, in my upper thigh. I learned here after 6 months of blood thinners that a body breaks down its blood clots. I have now had that blood clot for 2 years. It is not fully open, so use of a thigh high compression stocking is in use.
This journey continues.

Jump to this post


Replies to "I add that this Friday zoom meeting is with between 3- 8 women. We talk about..."

Oh gosh, you’re sure having to jump through a lot of hoops to make this happen! I’m so relieved that your caregiving plans are starting to take shape. There are some critical steps to ensure your health during your recovery time such as avoiding exposure to illnesses or things that your immature immune system won’t be able to handle for a while.
I have a very good and comprehensive guide for you to read through. It gives details of the transplants, what to expect, recovery, recovery at home, infection control and links caregiver resources.

~Caregivers for BMT, CAR-T, and Hematology Transplant Journey

https://connect.mayoclinic.org/blog/caregivers-for-bmt-car-t-and-hematology/

There’s a menu listed in blue.
You’ll see Allogenic Transplant-which is what you’ll be having.
Very important will be the Infection Prevention! You’ll need to review that and make sure that whomever you’re staying with has taken all the precautions.
You WILL be expected to wear an N-95 mask for several months because you’ll be highly susceptible to viruses, bacteria, molds & fungus…. It’s all covered in this guide.

You’ll learn more with your appt on the 5th! I’m sure pulling for you that this goes smoothly. Please let me know what you find out!