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What are most common side effects when starting HU (Hydroxyurea)?
Blood Cancers & Disorders | Last Active: 5 days ago | Replies (163)Comment receiving replies
I was on HU for 24 years. Only side affect was fatigue and yes- thinning hair.
Then I developed a bad case of locally advanced skin cancer on my head. As you know, on HU, you are sensitive to the sun and should be diligent with sunscreen all year round. But who put sunscreen on their head? I didn’t.
I was able to control it with a topical cream that took 6 months to eradicate it but I scared me off of HU. Please all- use sunscreen.
I am now on Anagrelide. I had no previous heart issues so it works for me.
Yes, it initially gave me some heart palpitations but my body adjusted.
I also take nicotinimide which works to thicken my hair and has been shown to be helpful in keeping skin cancer at bay. I am 66.
Was diagnosed with ET at 39.
Replies to "I was on HU for 24 years. Only side affect was fatigue and yes- thinning hair...."
Thank for sharing your journey. I started HU early this year and you have given me renew hope since you took the med for 24 years. Best of luck with Anagrelide. Can I just ask what dosage were you taking your last year with HU?
Thanks for sharing as this information is great to know. being on HU for 24 years and you are doing well. Happy New Years!
Jennifer
@nancyra Thank you for your informative post. Fatigue, thinning hair. Skin cancer.
Yes, I use sunscreen, and always wear a hat when out walking or in the garden.
Interesting that anagrelide does not have the same effects like more prone to skin cancer?
I have read that HU can create skin tumors on it's own, besides the sun sensitivity which enhances this. It's because HU damages your DNA. I have not researched Anagrelide yet.
Thanks also for mentioning your age. I'm 67, and just got diagnosed a few months back.
Hugs to you. Please check back in, let us know how you are doing.
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I hope you wear a hat when you're outside now?
They may not be fashionable, but they will keep the sun off.