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Essential Thrombocythemia: Making treatment decisions
Blood Cancers & Disorders | Last Active: 5 days ago | Replies (187)Comment receiving replies
I was diagnoses with ET Jak2 in jaune 2024, I am 70, jog and exercise daily, vegetarian. no weight problems. I was told I should be on low dose asa and HD 500 daily as my plt numbers were in the 500's. I balked at the HD and then was told I could wait until I hit 600 for the HD. I get lab monthly my plt have been over 600 x 2 months. y Dr now says I dont have to worry about clotting until they hit 1 million..I am assuming the 600 is really 600000. As much as I do not want to take HD, I am nervous about clotting...Thought?
Replies to "I was diagnoses with ET Jak2 in jaune 2024, I am 70, jog and exercise daily,..."
If you have no other underlying health issues, such as myself, just PV My oncologist says a platelet count of 600 or less is completely acceptable. I do take the Hydroxyurea 500 mg just 3X a week now with no side effects. Higher doses will make a difference but most go to lower doses soon after starting and do well.
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Hello,
I didn’t start on HD until mine hit 842. After 3 months I’m down to 210. I was taking 500mg once daily now he changed it on the 29th Feb 2024 to 400 mg daily. I was not ready to take meds even when I was at 842. It took a month after the prescription. I have ET Jak2 as well.