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CLL: How do you evaluate well-meaning tips from friends?

Blood Cancers & Disorders | Last Active: Mar 23 1:13pm | Replies (36)
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@catherine1290

This may be off topic but I can't find any discussion group that fits. I want advice on osteoporosis treatments. I was diagnosed with osteoporosis 2 years ago and have been taking Prolia ever since. 2 weeks ago I fell and broke my arm. Minimal displaced fracture of distal radius. Ortho told me to stop Prolia and casted my arm. I need new treatment for osteoporosis. My friend said she took Reclast for two years and her recent Dexa scan now shows osteopenia. Big improvement! What experience has everyone else had with this?

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Replies to "This may be off topic but I can't find any discussion group that fits. I want..."
Lori, Volunteer Mentor | @loribmt | Mar 2 7:36am

Hi @catherine1290. We have quite a lively Osteoporosis Support group with discussions about many of the recommended bone replacement supplements, dexa scans, side effects and success stories.
Here is a link to that group: https://connect.mayoclinic.org/group/osteoporosis/

I’m so sorry to hear about your recent fracture. I hope everything mends quickly! How long will you need to wear the cast?

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rubles | @rubles | Mar 2 7:59am

The reclast helped? Can anyone tell me what type of doctor to see for osteoporosis? I'm shuffled around by my doctors and I'm not receiving help. Doctors tell me I'm too complicated because of many medical problems but my bones are most important to me right now. Thank you

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kayabbott | @kayabbott | Mar 2 8:51am

I've had Reclast infusions 2x (about 2 years apart) for minor osteoporosis and the Dexa scans did show minor increase in bone density. A friend takes Reclast pills for severe osteoporosis, which helps but had the side effect that she lost smell and taste. It isn't without side effects, so check those before considering it. Resistance weight training and other weight bearing exercise is good for bone/muscle growth as well.

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