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← Return to AML, age 78, taking Decetabine/ Venetoclax, no transplant
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AML, age 78, taking Decetabine/ Venetoclax, no transplant
Blood Cancers & Disorders | Last Active: Jul 4 10:35am | Replies (66)Comment receiving replies
I am starting ara-c with Venclexta Monday. Treatment requires shot of ara-c twice a day with 1 Venclexta tablet daily. The shot has to be at Mayo so I will be driving 100 mile round trip twice a day for 10 days. Whether I continue after that will depend on side effects. I have the NMP1 mutation.
Replies to "I am starting ara-c with Venclexta Monday. Treatment requires shot of ara-c twice a day with..."
Hi @dmc1937 Thought it was time to drop by to see how you’re coming along with the treatments for AML. Are you still having to drive the 100 mile round trip for 10 days of treatment? Or were you able to transfer the treatments to a clinic closer to home for you?
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In addition to side effects, I think I should mention the intended effects. I started ara-c and Venetoclax because I had a relapse of AML. The relapse was in the form of AML cells in the prostate. After getting the ara-c /Venetoclax combination, the volume of my prostate shrank by a factor of five. A recent PET scan did not find any problem. These two drugs were a spectacular success for me.
Regarding transportation, which is always a problem for me, maybe the clinic would have some information about options. A few times I have taken lyft.