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AML, age 78, taking Decetabine/ Venetoclax, no transplant

Blood Cancers & Disorders | Last Active: May 29 10:27am | Replies (48)
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@dmc1937

I am starting ara-c with Venclexta Monday. Treatment requires shot of ara-c twice a day with 1 Venclexta tablet daily. The shot has to be at Mayo so I will be driving 100 mile round trip twice a day for 10 days. Whether I continue after that will depend on side effects. I have the NMP1 mutation.

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timt347 | @timt347 | Mar 2 7:14am

In addition to side effects, I think I should mention the intended effects. I started ara-c and Venetoclax because I had a relapse of AML. The relapse was in the form of AML cells in the prostate. After getting the ara-c /Venetoclax combination, the volume of my prostate shrank by a factor of five. A recent PET scan did not find any problem. These two drugs were a spectacular success for me.

Regarding transportation, which is always a problem for me, maybe the clinic would have some information about options. A few times I have taken lyft.

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