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IGA NEPHROTHY

Posted by kidneybestie1 @kidneybestie1, Feb 27 4:56pm

Hi I was recently diagnosed with IGA nephropathy this past January 2024 I am stage 4 according to my specialist its severely affected my kidneys. I June 2023 I had blood work done and everything was fine. Kidneys had no signs of anything. In August started feeling sick I thought it was stress had lots of migraines and fatigue, couldn't eat or keep food down started losing weight. My primary Dr sent me for head scans and to a neurologist. Neurologist did blood work asked me if I see a kidney Dr I said no why would I. She sent me to hospital Dec 22 to make sure blood work was correct and I was in hospital till 25 then went back to hospital January 2 to 6th where I had a biopsy and discovered it was IGA nephropathy. Is anyone going through this and how are you able to function with being on prednisone? I'm on blood pressure medication, vitamins, and I had to change my eating habits cold turkey. Everything has changed so fast.

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kidneybestie1 | @kidneybestie1 | Feb 29 11:07am

Aw thanks so much for your encouragement ☺️ I understand it's a long process and I understand a little bit about transplants my sister who is no longer with us had one August of 2016 she waited I believe 5 years to get her donor and she had been on dialysis for years. Unfortunately that same Dec she got a cold then got worse in January 2017 she had to be admitted for pneumonia and everything started getting worse, fluids Collected in her lungs around her heart and they told her she would have to do dialysis but she refused and so in February they sent her to hospice and passed away 😢. It's scary to me a little bit all this but I know I can't let that bother me too much. My illness has taken a huge toll on me mentally and physically. I have been trying so hard and it's so hard not to complain when all this is so new to me. I don't understand sometimes what my body is going through and if it's cause of all tbe blood pressure medication and prednisone and vitamins I take then I have blood work and see red numbers and out of ranges. So yes ! It's so much to take in and I just found out in January I had CKD

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kidneybestie1 | @kidneybestie1 | Feb 29 11:12am
In reply to @roxylulu22 "The other thing I forgot to mention yesterday was the paired donor program. If you have..." + (show)
@roxylulu22

The other thing I forgot to mention yesterday was the paired donor program. If you have someone that is willing to donate but is not a match for you, they can enter the paired donation program and be matched with someone else and it opens the pool to find a match for you! Your transplant team will explain.

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Thank you 😊 🙏

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