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A Pint of Sweat, Saves a Gallon of Blood

Blood Cancers & Disorders | Last Active: Feb 29 3:59pm | Replies (6)

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That is great that you are so proactive on your health. Doctors are good for diagnosing the usual illnesses, but less so if someone has a complex mix of issues. A poor (or overworked) doctor goes for the easy answers rather than plunging in. My celiac diagnosis is based on symptoms because the GI screwed up (left side of Dunning Kruger chart); he was sure that I had diverticulitis (still don't have it) so only took one illeoscopy biopsy. I'm a retired research scientist so like to investigate. If you don't mind the medical terminology, ResearchGate has a lot of peer-reviewed publications.

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Replies to "That is great that you are so proactive on your health. Doctors are good for diagnosing..."

in reply to @kayabbott As a former insurance investigator, I love researching! I stay away from Dr. Google, and have found so much information on NIH, Global Healthy Living Foundation and other non profit organizations.

For what it is worth, today is National Rare Disease Day, and they are encouraging those with a rare disease to wear stripes. Kind of like that lesson doctors are taught: look for horses not zebras. Find the quickest most likely diagnosis, which has been my experience. If you are interested, her is the link: https://rarediseases.org/

Thanks for the information on ResearchGate. I will check it out. I have found that there are so many resources available, and if I see something or some test I think I might benefit from I tell my doctor, thus the cortisol test, which my former rheumatologist described abnormal cortisol levels as "rarer than hen's teeth." LOL.

It is a terrific organization. I am sorry for your celiac disease, as I have a few friends with the same problem, and their diets seem difficult to manage. I feel fortunate not to have this affliction, however the ulcerative colitis can be problematic at times. One really does have to be more proactive nowadays, in terms of managing their own diseases, and I am glad you are as proactive as you are in this regard.