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Myasthenia Gravis: Share your treatment journey

Autoimmune Diseases | Last Active: Oct 21, 2022 | Replies (93)

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@mike1944

I was diagnosed with generalized MG 4/24/2019 and have been dealing with the challenges ever since. I am currently on 60mg prednisone, 3,000mg Mycofenolate, 60mg Mestinon, and a weekly IVIg infusion. Spent 6 weeks in the hospital when diagnosed and have been hospitalized 3 times since.
I apologize if this is too much information.

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Replies to "I was diagnosed with generalized MG 4/24/2019 and have been dealing with the challenges ever since...."

Have you seen that the MGFA has cancelled the annual conference due to covid19?

I appreciate your info. I wish you well. My Neurologist did tell me the first two years after diagnosis are usually hardest. I paraphrase 😏
I pray your aggressive treatment will soon make a big difference in your symptoms.
I am beginning to notice big improvement a few days after my IVIG that last about 10 days.