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Myasthenia Gravis: Share your treatment journey

Autoimmune Diseases | Last Active: Oct 21, 2022 | Replies (93)
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@janyce

In my earlier post, I described my getting a diagnosis of MG last year. I was hospitalized three times last year. Each time, I received several IVIG. In early February this year, I was very sick with a UTI and upper respiratory problem but not hospitalized.
My meds for MG are IVIG every 4 weeks (just changed to every 3), Mycophenolate 500MG 2 in morning 2 in evening and Prednisone 10MG daily.
I am 81 years old with Type 1 Diabetes, and don’t expect to ever be “perky” ha!
But this past month has been ok. I had 3 weeks with pretty good vision. So, hope springs eternal😊.
I wish you well.

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Replies to "In my earlier post, I described my getting a diagnosis of MG last year. I was..."
MGMolly | @Erinmfs | Mar 14, 2020

I wish there was a not heart, as I'm sorry for your ivig story. There was a time when I should have had ivig I think, I was misdiagnosed, having trouble breathing.

My MG complaint this week is that the mg has affected my good eye, I cant see! I go for walks, but I only see the sidewalk ahead of me. But I am breathing and walking!

Thank you for sharing.

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