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Myasthenia Gravis: Share your treatment journey

Autoimmune Diseases | Last Active: Oct 21, 2022 | Replies (93)
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@valdezamya

Greetings, I'm 43 yo female with persistent fatigue and weakness for four weeks, which did improve for three days. My blood tests (stratified not performed) were negative for mysthania graves, thyroid, adrenal fatigue, vitamin deficiency, etc. No pain. When I engage in a home test of holding my arms out and looking up (which my neurologist did not have me do), my body/arms/head "sink" from fatigue. I experience positive results from mestonion. I could not tolerate a full EMG due to severe pain--first half of EMG normal. MRI of the neck was normal. Any advice? Second neurologist opinion? Current neurologist recommends PT or CBT. I plan to try PT. Thank you for your time. Sincerely, Amy

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Replies to "Greetings, I'm 43 yo female with persistent fatigue and weakness for four weeks, which did improve..."
John, Volunteer Mentor | @johnbishop | Jun 19, 2019

Hello @valdezamya, welcome to Connect. I'm tagging our moderator @ethanmcconkey to see if we should move your post to another existing discussion where it will have more visibility and you can meet other members with similar symptoms.

> Groups > Autoimmune Diseases > Myasthenia Gravis*
-- https://connect.mayoclinic.org/discussion/hi-everyone-let-me-begin-by-telling-you-some-of-my-story/

There is another discussion that you may also find helpful and want to read through.

> Groups > Women's Health > Chronic Illnesses of Millions of Women Left Untreated
-- https://connect.mayoclinic.org/discussion/chronic-illnesses-of-millions-of-women-left-untreated/

Are you able to share which symptom bothers you the most?

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MGMolly | @Erinmfs | Jun 19, 2019

Hi,

I have myasthenia gravis, and my lab tests were negative in the beginning. I had 3 MuSK antibody tests before one came back positive. I had myasthenia gravis 2 years before it was properly diagnosed. I had weakness in my arms and legs, not any longer but I'm not as active as I once was. My EMGs were all negative. are your eyes drooping, do your eyes fatigue with looking up? I couldn't not tell from your writing..... Good luck to you! 🙂

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