Hi, I had all the classic symptoms of PV and at my annual visit my bloodwork showed high HGB. We retested in 6 weeks, higher so off I went to 1st oncologist. Then 2nd who still wasn't listening to my concerns about being Jak2 neg and only 5% or less PV cases are Jak2neg.
Went to a 3rd, who agreed with my hunch & we did the BMBX.
He's a hematologist oncologist and I definitely have no blood cancer so it's likely Secondary Polycythemia. Could be a cancer lurking somewhere, we wasted 9 months and now we're doing CT scans with contrast etc to check for any malignancies in my ovaries, abdomen, lungs etc.
Will also get a sleep Apnea test done, I don't snore etc but you never know. It could be as simple as that's what's causing my body to produce too much HGB.

I'm just going to keep pushing until I feel better and have answers. I was extremely active daily with work, sports etc and the joint pain and fatigue have been debilitating. It is quite a bit better being in Florida visiting my daughter, I've always been a cold weather girl but maybe hitting 60 is making me more of a snow bird?? I'd DREAD the thought, I'm an avid skier (not this season obviously).

Keep pushing for answers, go with your gut, do lots of research and ask many questions- write them all down before any doctor visit.

Hope some of this helps.