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Endometrial stromal sarcoma (ESS): What treatment did you get?

Gynecologic Cancers | Last Active: Sep 10 9:55pm | Replies (68)
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@swagner2024

@naturegirl5
Thanks so much for your response.
I am in limbo right now. I do have the app and have logged into the portal and there is nothing scheduled right now. I am assuming the testing is going on right now.
I live in Illinois and it is about 6 hour trip to get up there. It's good to know that it's worth the trip. I hope you are doing ok now....
Warm Regards, Sandy

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Replies to "@naturegirl5 Thanks so much for your response. I am in limbo right now. I do have..."
Helen, Volunteer Mentor | @naturegirl5 | Feb 28 4:52pm

@swagner2024 Your present diagnosis is frightening enough without worrying whether there is a local team that has the expertise to take care of you. Our trip from Michigan is 7.5 hours of driving time (that's not counting the inevitable stops for the bathroom, fuel, and food). After 4.5 years of these trips I must admit it gets tiring to contemplate another trip within 3-4 months. But we do it because the care at Mayo Clinic has been so excellent. I remember thinking on the way to Mayo Clinic for to my surgery for my hysterectomy that I felt very grateful to be able to go to Mayo Clinic and have the means to do so.

Thank you for the good wishes. I am doing OK. Will you please let me know when your appointment is scheduled? I'll check back in with you.

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