You are welcome. @gretagean

@gretagean i can speak from my personal experience, I have other autoimmune diseases too. Ulcerative Colitis is the other one that gives me the most aggravation. I was told by one doctor that I had celiac disease as well, but my new University of Colorado docs have said my celiac test is negative. I've just learned that I have MGUS and I'm being tested for multiple myeloma. Apparently they are linked with autoimmune diseases. I will have the second round of test results back sometime this week.

The way I deal with having a full "dance card" is the same as I would at a dance! One dance at a time. It has been an effective way to live my life so far, but I admit this last one is knocking me off my normal way of dealing, so I understand your post very well. Re your question about nightshade plants & diet. I have eliminated grains (NO wheat), legumes, processed food, all oil except olive oil, & dairy. I do not seem to have a problem with peppers or potatoes. I did this elimination by trial & error over a lot of years.

Let us know how you are doing.

Sending you positive vibes

Abbey

Hi, Colorado Abbey. Well, I had the SF EMG. It was negative/normal as well. The neurologist recommended I double my mestinon dose to 480 mg per day (120mg 4x day) to see if that provides a significant improvement, as a last ditch diagnostic test. The change is pretty dramatic for my energy levels. Back to normal, other than sleeping like the dead. I no longer crash at 3p, and my eyelid does not seem to crash in the early evening either. My vision doesn't crash with fatigue either. I can't say there's a dramatic visual improvement in the ptosis position of the eyelid, though. It was never severe, so the subtle improvement is only noticeable to me. I will have to see what the neurologist thinks in 2 months, whether this is enough of a marked improvement to call it MG or whether he wants to keep searching for a reason. Meanwhile, the initial dose of mestinon, which I unwittingly took on an empty stomach for 2 weeks, triggered full-on IBS, so I now must be extremely careful to take with a full meal (4 times a day!) and I am only an extremely limited diet (AIP low-FODMAP). Basically, if it sounds tasty, I can't eat it. It is much better than the IBS symptoms, however, The diet change does stop the IBS symptoms cold. That's it for now. It seems to be leveled off at the moment, and if I could just drag myself out of bed in the morning on time, I can even tolerate exercise again! Heaven!

Did you ever find another solution to help with remission? thank you