← Return to Have you been prescribed zonisamide for seizures? My experience.

Discussion

Have you been prescribed zonisamide for seizures? My experience.

Epilepsy & Seizures | Last Active: Dec 16, 2022 | Replies (47)
Comment receiving replies
@minajo

My daughter (48, nonverbal, autistic, epileptic)was just hospitalized for intestinal impaction and has been on Zonisamide for 18 mo.. also Seroquel ( 8 years,low dose)and wondering if anyone has had this happen? She was seriously ill, almost needed surgery..Thank you

Jump to this post

Replies to "My daughter (48, nonverbal, autistic, epileptic)was just hospitalized for intestinal impaction and has been on Zonisamide..."
Leonard | @jakedduck1 | Feb 28, 2024

@minajo
Isn’t Seroquel more likely to cause constipation than Zonisamide? Did the doctor say the Zonisamide was the cause?
Take care,
Jake

VIEW AND REPLY
Chris Gautier, Volunteer Mentor | @santosha | Feb 28, 2024

@minajo
Good Morning,
I am sorry to hear that!
According to my gastroenterologist, all neurological medications have a direct impact on the gut because they cause microbiota imbalance. As the doctor said, one has to evaluate the costs versus the benefits of those medications, because they have consequences.
Early last year, I was diagnosed with SIBO (small intestinal bacterial overgrowth) caused by the AEDs I have taken for 3 years. I am still treating my SIBO, it is not a fast process. My mother who has Alzheimer's has also been having consequences of the neurological medications she has been taking.
It is sad to see that neurologists and epileptologists do not tell us about the consequences of taking AEDs and other neurological medications!
Today my epilepsy is being treated with medical cannabis, trigger management, and diets and I am far better.
If you have not already done it, I recommend seeing a gastroenterologist doctor.
Wishing you and your daughter all the best.
Chris (Santosha)

VIEW AND REPLY