← Return to Essential Thrombocythemia: Making treatment decisions

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@winmil99

Thank You, you sound very informed on treatments and the disease,. It is stressful. I have been told by my hematologist and a specialist at Mayo, that I could wait until I am in the 600's I get a re check on Thursday..I am not taking lumbrokainse ..and now I doubt I will ...vegetarian x 50 years, Not really interested in eating ground up worms ha!

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Replies to "Thank You, you sound very informed on treatments and the disease,. It is stressful. I have..."

"Ground up worms." Thank you for the laugh of the day!

Lumbrokinase does seem to help heart patients with clotting factors, but does nothing to reduce platelet counts. Here's more on it: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9851794/#:~:text=Due%20to%20its%20effective%20fibrinolytic,reported%20%5B12%E2%80%9315%5D.