Anyone had a similar experience?

Posted by copeterson @copeterson, Feb 22 3:37pm

Thought I would share and see if this resonates with anyone. About 9 years ago I woke up and felt like a train had run me over. Absolutely came out of nowhere. After a few false starts I was diagnosed with PMR and osteoarthritis. Flu like symptoms (no fever) morning pain in the hips and afternoon neck/shoulders, and low energy. Started prednisone, hydroxychloroquine, meloxicam, and others. Gave Actemra a try but did not help. Only help came from 4 hydrocodone tablets a day. I became dependent but never, ever, failed to follow my doctors' instructions. Like many of us on the opioid train I wanted to get off and learn just what exactly my baseline pain level was. Well, I did, and I found out. I'm hurting 70% of the day and it ranges 6-8 (on pain scale) depending on my level of activity. I am active but I pay the price. I have had no pain meds in two years. I'd really like to have an option of a pain medication but I moved out of state and my doctor cannot prescribe. So, nothing changes. I simply hurt most of the time. My primary physician will not prescribe pain meds and my rheumatologist cannot. Here is the punchline - On my monthly call to my rheumatologist he tells me he doesn’t believe I have PMR! Just osteoarthritis. Wow. Don’t know what to think. Anyone had a similar experience??

Interested in more discussions like this? Go to the Polymyalgia Rheumatica (PMR) Support Group.

Fascinating. I completely missed that phenomenon. I’ve been taking gobs of biotin and trying to imagine I see improvement. My nails used to be so hard they were difficult to trim and absolutely never split. Now they are thin, brittle, split easily, and have vertical lines. Not ridges because they aren’t raised. But some difference that looks like lines.

Thanks for the insight…

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I have had nail ridges for many years probably before pmr was diagnosed. Thumb nails are the worst.I also have a problem with nail splitting sometimes.

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@pmrsuzie

I have had nail ridges for many years probably before pmr was diagnosed. Thumb nails are the worst.I also have a problem with nail splitting sometimes.

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Yep ... I have nail ridges too. I just thought they were normal for me. Are they supposed to be smooth? My nails often break and/or split too. I think they get too long and it is time to trim them shorter. I don't like it when a broken nail catches on something because that really hurts.

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