What happens after Tymlos?
I’m going to be finishing the 18 month course of Tymlos in April/May of this year. Endo is saying that I should follow that with Prolia (within weeks) and then Reclast.
Has anyone else followed that treatment plan or have any comments about it?
Thank you.
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Windy are you going to do 3 or 4 injections of Prolia after the Evenity and then reclast ?
No. I will do Reclast with a 20% test dose first. The idea of just a few Prolia's is something I will bring up with my doc in a couple of weeks but he has told me he avoids Prolia in his practice.
I've already done 2 years of Tymlos (after 5 years on a cancer med). I am about ready to be done at some point! But our estrogen levels will continue to be low . Hoping for a break in a year or two with monitoring.
please whatever you do do not take prolia it is not a good drug and you will have a lifetime of compression fractures and nit of your doing
I need Tymlos but cannot afford it but don’t qualify for Radius’aid. May I ask if you found help through another source?
Nope, I didn’t.
I know nothing about this but maybe someone needing financial help could check it out.
https://simplefill.com/osteoporosis-financial-assistance/
My doctor said 2 years on Tymlos was the limit so that's where I am right now. He wanted me to start on prolia but I am getting a tooth implant so I don't want to take a chance with that drug. I have a prescription for Evista and supposed to start this month. Hoping to find information on this site about Evista before I start.
What is his rational for wanting prolia? Is this an endocrinologist? If not, how about a second opinion?
Has anyone considered bioidentical hormones to maintain their gains after Tymlos rather than Prolia or Reclast? I finish my 2-years on Tymlos this month and my rheumatologist wants me on Reclast. My cardiologist who monitors all my bloods is suggesting HRT because my counts are virtually nil. I’m 72 and had a complete hysterectomy when I was 38 with only a very limited time on hormones, therein my severe osteoporosis diagnosis 5 years ago. I’ve had improvement in my spine with Tymlos, with very minimal side effects. Now it’s time to begin another protocol and frankly I’m concerned about the next step. I am considering hormones as my cardiologist is well educated in their effectiveness for female health and feels confident they will help maintain my bones. I’ve never fractured, thank God, though my numbers were in the -4’s before Tymlos and I’m very active. I may consider a low dose Reclast infusion, like @windyshores as well and see how I do. I need to get busy as I only have another week before ending Tymlos. Lots of decisions that I don’t like having to make. But we have to be educated and advocates for our health regardless of what we read or are told. It’s quite a journey.
My situation is similar to yours. 76
Early menopause at 38. Spotty short duration hrt. I am having a functional medicine consult in August to see about testosterone and perhaps some form of estrogen. Would love to keep up with your discoveries. And kudos for having a doc who supports you.