← Return to Interstitial Cystitis: Anyone have symptom relief tips?

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@jjb1225

Your comment caught my attention.
I also live in Michigan ( GR area).
I have wondered for years if I have IC because of my pain episodes.
I started Pelvic Floor Therapy @ 6 months ago and I have made TERRIFIC progress with the exercises and the serious incontinence I have experienced for many years.
A few weeks ago the pain spasms have begun again.
I do not think it is a UTI at this point - so I am asking - what is it?
Who evaluates or diagnosis IC ?
One of my urologists believes it has todo with the nerves from the S1- S3 joints in lower spine that branch into the pelvic areas. I do have degenerative disk disease.
I am thrilled with my progress with PF PT teaching though which means not wetting the bed anymore 🤗🤗
Oh, I am 76 but still very healthy except for my weight problem.

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Replies to "Your comment caught my attention. I also live in Michigan ( GR area). I have wondered..."

Hi, that's great you are finding the pelvic floor PT helpful. Usually, with IC the bladder pain improves during urination and with a UTI it hurts a bit more during urination. The most common way IC is diagnosed is through cystoscopy (looking into the bladder with a scope and under anesthesia). Then they do what is called hydrodistention (instilling liquid into the bladder). The hallmark for IC would be blood seen by the dr. when this is done (again, you would be under anesthesia and would not be aware of any of it). Before that is done, though, they would still test your urine to be sure it was not just an infection. I encourage you to see a urologist if this continues if you haven't already. I say all this as a retired RN and as a pt with IC. The pain started for me in my 30's and as I am now over 70 it has decreased. (I was told this is often the case that the pain decreased after age 70). Best wishes to you.