@mrgreentea. Hi Paul. You caught me a little off guard with your comment this morning. It made my day. So I just had to share it with my husband. His reply regarding my knowledge of leukemia and technical explanations, “Even a blind squirrel finds a nut from time to time.” 😂

To answer your question, yes, most of my knowledge of blood cancers and conditions came from total immersion feet first into my personal experience with acute myeloid leukemia and the process of the bone marrow transplant and treatments/chemo/meds for both issues over the past 5 years. I also lucked out with a brilliant transplant doctor who enjoys answering questions. My husband and I have learned so much from our almost daily visits with either him or his staff over the course of 4 months right after transplant and our subsequent followup visits.

But that also whetted my appetite to learn more. I’m always researching for myself and members in Connect. I’ve lived with some of the same symptoms, used the same chemotherapy and treatments as other blood cancer patients so it’s easy to relate to people.

Our blood/bone marrow/immune systems are incredibly complex!! Nothing is black/white/written in stone…or blood. Every person is different and what works for one person in treatment doesn’t automatically work for another. I have such an enormous respect for hematologist oncologists and the mysteries they have to unravel! The minute details of each subtype of blood cancers or conditions are mind boggling.

Quite a bit of my information comes from reading research papers on Scholar.google.com and medical sources such as cancer journals, ONA (oncology nurse advisor), Cancer Therapy Advisor-daily updates.

If I remember correctly, you’re still waiting for a firm diagnosis with a potential blood condition. When you get that information it will be easier to zero in on subject matter without being swept off into a rabbit hole. It’s so easy to start reading about things that aren’t relevant, which can be real anxiety producers!
Let me know when you find out and then we can go from there. ☺️