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Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

thebeeman | @thebeeman | Feb 18 12:24pm
In reply to @JustinMcClanahan "Welcome to Mayo Clinic Connect @thebeeman. You may find this topic quite relevant your search for..." + (show)
@JustinMcClanahan

Welcome to Mayo Clinic Connect @thebeeman. You may find this topic quite relevant your search for a diagnosis and the possibility of CSS:
"Has anyone been diagnosed with Central Sensitization?" - https://connect.mayoclinic.org/discussion/has-anyone-been-diagnosed-with-central-sensitization-if-so-id-like-to/

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Justin, thank you for that information! Yes, that's me!

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julkun | @julkun | Feb 19 7:36am
In reply to @jimhd "As I recall, the restrictions had to do with protecting the leads to avoid having them..." + (show)
@jimhd

As I recall, the restrictions had to do with protecting the leads to avoid having them move while scar tissue forms to hold them in place. No lifting, bending or twisting for maybe 4-6 weeks. I think that driving was ok once I was off narcotic pain medication. If I had it to do over again, I would time it so I could do yardwork during the spring and summer months. I have a lot of work to maintain my place. I have ten acres, but around an acre around the house and barn. At 73, I'm working toward making it more low maintenance.

The restrictions were certainly worth it. The first year was wonderful, having so much less pain. I'd forgotten what it felt like without intense pain. I'd say that recovery limitations were nothing when taking into consideration the potential benefit.

No one can know for sure if or how much they will benefit from a SCS implant until they do a trial.

I hope that if you get an SCS, you'll enjoy the pain relief as much as I did.

Jim

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Thanks for your info. Within a few weeks, after I see my pain med doctor, I would like to speak to you and pick your brain. We are the same age, but I don't do gardening. LOL. I am thrilled to hear of your positive outcome. Be well, Jules

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dove1 | @dove1 | Feb 23 5:57am

Rebuilder, 300 norapathy. Started September 22nd 2023 After 90 days started overs stimulating.
Had the stop using for a week.
Now I'm back in the water Bath 5 minutes in the morning on my 4th day. Hoping I don't get burning later. On in the day.
Anybody else experiencing this problem?

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Mentor
Jim, Volunteer Mentor | @jimhd | Feb 24 4:12pm
In reply to @myggle1950 "Thank you so much! I continue to hope and search for answers. I am very interested...." + (show)
@myggle1950

Thank you so much! I continue to hope and search for answers. I am very interested. In the supplements that you mention what milligram would I get and where do I buy them? Is there a particular brand I can’t thank you enough I hope you have continued better health.

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A word of caution: it would be wise to discuss any supplements you plan to take, for multiple reasons, not the least of which is possible interactions with medication you're already taking. A conversation with the pharmacist is a good option, as well.

Jim

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felicia2 | @felicia2 | Feb 24 5:01pm

I’m late 80ish and have very painful osteoarthritis in knee and hips- now very weak muscles all over.
I get Orthovisc shots every 6 months in knee- very helpfulBut nothing helps other joints? Any meds for Osteoarthritis- possible Psoriatic arthritis??
Thanks Donna2

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joyce1109 | @joyce1109 | Feb 24 10:26pm
In reply to @tkdesign "Most online supplement retailers will have all types of magnesium, for sure ALA (alpha lipoic acid),..." + (show)
@tkdesign

Most online supplement retailers will have all types of magnesium, for sure ALA (alpha lipoic acid), and PEA ( a fatty acid). Not sure i can recommend one brand over another. Lot of people in our TC forum use Mirica PEA. I use Natural Factors. I can't for sure say it's helped a ton yet, but here it takes a few weeks to notice an effect. Lot of good brands ALA out there. I use dr's best. Jarrow is usually good or NOW brand. Cramp bark is a bit harder to find. Might need to find some bulk herb supplier. It's part of many women's monthly cycle help formulations as it helps menstrual cramping, but I've found it good for general muscle tightness. Leg muscle cramping at night could be a mineral imbalance too..make sure you get potassium, magnesium in balance. There are also magnesium lotions you could rub on cramping areas. Or using epsom salts in a bath. I use herbs like valerian, kava, black cohosh, st johns wort, skullcap also for nerve pain. You can research a bit online for more info on these. They each work a little differently. Of course always make sure to use cautiously if you're on prescriptions meds. There can be interactions. I've tried CBD also internally, but haven't gotten as much help from that. Everyone is different. Hope that some of this may be helpful to you! I've suffered with chronic pain for many many years and can't tolerate most Rx drugs or suffered terrible side effects from them. So I had to teach myself what natural remedies are out there and use trial and error. I don't know as much about ayurvedic (Indian) or Chinese herbal medicines, but they are out there too. And there are many manual physical therapies most people don't know about that can be helpful too.

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Before using valerian, kava, and St John's Wort, please read thoroughly independent reviews on each one. I decided against using any of the above. Are you looking for help with depression, anxiety or sleep? Please discuss with your Dr or pharmacist. I did a lot of research and now depression, anxiety and sleep problems are handled successfully through my PCP with prescription meds.

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shalombendavid | @shalombendavid | Feb 25 10:26am
In reply to @thebeeman "I'm Jim, 75 yrs. I was a beekeeper for 37 years and did a lot of..." + (show)
@thebeeman

I'm Jim, 75 yrs. I was a beekeeper for 37 years and did a lot of lifting. I hurt my lower back 3 times. The 4th time was 10 years ago and it's never stopped hurting. I have had a laminectomy, stem cells, 15 epidurals, many doctors with no answers or relief. MRI and Xray show a perfect spine, hips etc. Chiropractors, massage therapists, accupucture, help temporarily. The only real help has been 4 years of physical therapy and 35 mg of Percocet/day. I have self diagnosed this as Central Sensitization (CSS). It's 24/7 pain/exhaustion. I just don't know where to turn anymore. The narcotic comes with it's own issues, but has allowed me to have something of a life. CSS seems to be the only logical explanation????

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have you tried calmare/scrambler tx?

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jumpin138 | @jumpin138 | Mar 3 11:32am

Hello fellow chronic pain endurers. My name is Jack. I'm a retired social studies teacher and a father of 4, grandpa of 1.
I have been dealing with pain since I blew out my L4 & L5 in 2000 carrying a couch.
I have had 4 back surgeries that dealt with stenosis, decompression, and fusion. I've had bilateral knee replacement and both hips replaced. All of this due to degenerative bone and joint disease. Though I've had pain since 2000 I was still able to work as a teacher and coach. I stayed very active with the help OTC pain relievers, and joint support supplements. I didn't consider myself having chronic pain until my 2018 back fusion surgery. That is when I started to take opiod pain meds on a regular basis. I am retired now and I had hoped to continue as a substitute teacher but my increased pain, and the negative effects of opiods on my ability to live normally have prevented me from working. The only things that keeps me going now is my belief in God, love of my family and friends, and getting into the gym as often as possible. I wish you all luck and prayers for your pain.

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jenatsky | @jenatsky | Mar 4 8:25am

@jumpin138 now that you’re a chronic pain status you require long term pain meds that work 24/7. Take a gander at this and share with your pain doc. You appear to be on track with your activity so don’t try and over do so you don’t exacerbate your pain. Since you have degenerative arthritis it’s only time before something else comes up. Good luck with pain control.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4675640/

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thoracic | @thoracic | Mar 5 2:03pm

I've had grade one spondylolisthesis since I was a teenager. I had a fusion which helped me stand as pain-free but I hurt my abilities to sit for a long time. I kept working and got a condition called repetitive strain injuryin my arms. I got a relief from taking Tegretol for many years and also the the drug olanzapine has helped my back and repetitive strain injury. It's my understanding that there are many anti-seizure drugs that can help with pain, of course such as Neurontin and Lyrica. For some reason, Tegretol was the only one I could tolerate. Weird. I also substantially cut back my activities and that's the only way I can survive.

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