1. < Autoimmune Diseases

CIDP/GBS

Posted by bjbates53 @bjbates53, Sep 27, 2023

I was diagnosed with CIDP in 2001. My neurologist says it is no longer active and the weakness I experience with exertion is from nerve damage. Anyone else have the same problem? I’m having difficulties exercising without wiping out for several days.

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Mentor
Becky, Volunteer Mentor | @becsbuddy | Sep 28, 2023

@bjbates53 Have you had this severe fatigue since you were first diagnosed? Has it gotten worse? There is an ongoing CIDP support group that you may wish to check out . Someone there might have good advice.
https://connect.mayoclinic.org/discussion/cidp-chronic-inflammatory-demylinating-polyneuropathy/
You could start asking your questions there, also

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1 reply
Nemo1 | @nemo1 | Feb 21 4:49am
In reply to @becsbuddy "@bjbates53 Have you had this severe fatigue since you were first diagnosed? Has it gotten worse?..." + (show)
@becsbuddy

@bjbates53 Have you had this severe fatigue since you were first diagnosed? Has it gotten worse? There is an ongoing CIDP support group that you may wish to check out . Someone there might have good advice.
https://connect.mayoclinic.org/discussion/cidp-chronic-inflammatory-demylinating-polyneuropathy/
You could start asking your questions there, also

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Do you have a link to share about CIDP - chronic inflammatory demyelinating polyradiculopathy?

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1 reply
Mentor
John, Volunteer Mentor | @johnbishop | Feb 24 6:52am
In reply to @nemo1 "Thank you Becky" + (show)
@nemo1

Thank you Becky

Jump to this post

@nemo1 You might also find this webinar on CIDP from the Foundation for Peripheral Neuropathy helpful.

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1 reply
Nemo1 | @nemo1 | Feb 24 7:33am
In reply to @johnbishop "@nemo1 You might also find this webinar on CIDP from the Foundation for Peripheral Neuropathy helpful...." + (show)
@johnbishop

@nemo1 You might also find this webinar on CIDP from the Foundation for Peripheral Neuropathy helpful.

Jump to this post

Thank you very much for the help John. I appreciate the information.

I watched the video. I saved the neuropathy foundation account so I can read up and listen to them.

The doctor woud not recommend over the counter (otc) supplements and left it to consumer to try or not try “otc” vitamins etc.

Thank you again for the link. I will use it as a resource for information.

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