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Anyone take new drug Camzyos (mavacamten) for HCM?

Hypertrophic Cardiomyopathy (HCM) | Last Active: Sep 23 7:57am | Replies (770)
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@twizzy

I am brand new at this. EMTs saved my life and got my attention. Oklahoma Heart Hospital Drs gave me info on Camzyos after diagnosing HCM. I am 65, was healthy (I thought) and only have Medicare. Is there help purchasing this drug?

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Replies to "I am brand new at this. EMTs saved my life and got my attention. Oklahoma Heart..."
ajkleiman | @ajkleiman | Feb 24 7:55am

Healthwell Foundation provides financial assistance for costly medications in the form of grants. Many Medicare Part D providers require you to first satisfy your catastrophic copay limit before they pay at 100%. This might amount to several thousand dollars in order to reach this level. Hopefully a grant might help bridge that hurdle. Good luck.

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Debra, Volunteer Mentor | @karukgirl | Feb 24 11:47am

Hi @twizzy and welcome to Mayo Connect!
Wow! It sounds like you almost didn’t make it! Thank goodness you were saved by the EMts.
It sounds like you were totally caught off guard by HOCM. I can understand that, because I was too.
I didn’t get to try Camzyos, but hopefully some others with experience can jump in here and answer your questions. The Camzyos group a wonderful place to learn from each other. I know other members have had success getting this approved, and I hope the same for you.
Is your cardiologist familiar with HOCM? Can their office assist you with the process?

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jaymaysea | @jaymaysea | Mar 1 7:14am

Good Morning, Bristol Myers Squibb has a Patient Assistance Foundation. If you qualify, they will provide you with the medication at no charge.
Here is the link: https://www.bmspaf.org/
They have been wonderful.

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