← Return to Anyone take new drug Camzyos (mavacamten) for HCM?

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@mspope111

Hello Everyone,
I am 61 year old woman with HCM. I started CAMZYOS 2 days ago. For some reason, my heart feels like the strain is off it. We shall see. I hope and pray this is the answer! My question to those who use this drug successfully, what symptoms you were having that went away? Blood pressure, fatigue, tighting of the chest when exercising? Thanks!

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Replies to "Hello Everyone, I am 61 year old woman with HCM. I started CAMZYOS 2 days ago...."

Hi @mspope111 . Welcome to the group. You will probably find lots of support here - I know I certainly have. I've been on Camzyos since mid-Sept last year. I had 17 years of progressively worse fatigue, shortness of breath, dizziness, chest pain. Classic heart attack kinds of symptoms except for the arm and jaw numbness. Never any blood pressure issues though. All on the tiniest bit of exertion - bending to tie shoes, walking up 1/2 flight of stairs. Even walking on clear, flat ground while wearing heavy winter boots. Then just like you, on day 2 of Camzyos I noticed things that should have hurt, suddenly weren't bothering me so much. Within 2 weeks EVERYTHING disappeared, and has stayed away but for a couple occasional, one-day hiccups here and there. My cardiologist saw room for further improvement and increased me from 5mg to 10mg at the 12 week point. Again, a couple very minor hiccups but all seems well again. As I have said in this group before, I don't know what my echo numbers say, and I'm happy to let my cardiologist continue to lead me down this path since I feel so GREAT! Unfortunately, there are others here who have not had the same positive experience, and I feel terrible for them. I hope your results are like mine, because it has given this 59 year old his life back. Good luck!

Hi @mspope111, Welcome to Mayo Connect! I am so glad you found this site...and so happy to see other members have tried to answer your questions. How wonderful that you feel some relief in such a short time on Camzyos. Have you noticed any other changes in the past week since being on this? When were you diagnosed with HOCM?