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Essential Thrombocythemia: Making treatment decisions
Blood Cancers & Disorders | Last Active: Sep 15 11:57am | Replies (160)Comment receiving replies
My numbers were around 900 when I started taking Hydroxyurea 500 mg/day in June 23 and numbers started dropping almost immediately. I’m around 550 now and taking 500mg 6 days per week. I have hot flashes (again; I am 71yo female) and my shins occasionally feel sunburned for short periods of time—like 5 mins.
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My first inkling that something was wrong with me were the return of hot flashes 10 years after menopause. GP did umpteen endocrinology tests that were all normal. My hemo told me after ET diagnosis that the hot flashes and night sweats were part of the blood cancer landscape. I still get them occasionally since I started on the HU, but HU doesn't make them worse.
I also get the "sunburned shins" sensation, but no way was I going to report that one! I just slather on the CeraVe, and it eventually goes away. Thank you for posting yr experience. Makes me feel less nuts!