Who else just wants to feel like a pile of poo with me today?

Poor thing. Start rinsing with a weak saltwater solution. Kind of helps heal as fast as they emerge in your mouth.

Baths, showers whatever works best.

Gotcha on my list to send good Juju today. ❤️

@marymaryoregon
One thing is certain, your sense of humor is intact!
I feel your pain. Sometimes I sit here in my recliner and waste my time on “X” (Twitter) then I have the “should be” making me feel guilty.
I’ve been coloring on my phone. The app is Freeform. I will try to add a picture of one of my creations here.

Today and every day xxx

I have been caught in this “Groundhog Day” for two years now. I know some of you have been here longer.

I salute your sense of humor because mine up and went quite some time ago. I get so sick of being on the couch only to get out for worthless medical appointments.

I don’t have a lot of pain, so I am thankful for that, but I am too dizzy and disoriented to really live my life. I have to be very mindful of my limitations or I will fall.
I feel like I operate at about 10 percent of my old normal.
It sucks.

Wow, I get it. I'm finally healed from a bad reaction to nucala Mepolizumab that was supposed to address my asthma which is part of 'vascculitis" that doc was so excited to have confirmed in me. That was Nov 6 2022 and I had two more months of infusion when I had to stop. I had the worst year of my life. Now because of the Prednisone I had to take, I now have a fractured L1 vertebrae. It never ends. I retired January 1 2017 and have battled everything from neuropathy to sinus surgery, back surgery, snapped bicep tendons, you name it. I'm trying to remain positive but it's hard. So I do a few things around the house and that's it. I sit and watch TV. My passion and happiness was in my garden/yard. I haven't been out there since last April. So if you need someone to follow with I'm your girl. Take care out there.

Your heading was hysterical…your sense of humour will see you through this rough patch

You are very STRONG and have a great sense of humor. Try to stay this way to help you deal with this situation as best you can. I have just started on this journey and I am encouraged by your attitude.
Ray

What great comments! And so true.
Somedays are just too much... those are my "Pajama Days". Nothing will be gained by overreaching g those achy bones or muscles.
I've been on this road for 5 decades(ooo I just counted, yikes); this road is a long one, often with great potholes! I feel for you who are at the beginning, as this is the most distressing time... no diagnosis, medications are challenging, friends are going through their own 'shock and horror' at you and the future presents as a scary prospect! What to do!
This sounds corny, but your whole life is different now, so you might as well develop a new direction. Learning a whole new way of living starts by taking inventory on' is this and that really so important anyway'? Our 'modern' North American way of life is not helpful when it comes to changing priorities! We all have heard the saying, slow down and smell the roses... but when you come.e to a screeching halt... nothing smells very good!
We are pumped to get a good job, accumulate neat stuff, and go,go go.
When one becomes ill, all of that means nothing. I think it is true that the first few months (years for some) are the worst as you change your universe to meet your new needs and reality.
Appreciating the small / tiny things sounds trite but true. Yes, terribly hard when stuck in a body that is betraying you every minute. If you are very fortunate, you will go through and into this new life with the support of friends and family. But support is what you must find!!
Make a 'circle' of supportive people, in person or online. You will find good shoulders to lean on, and ears to scream into! Which is very helpful!
Also, become your own best advocate. Learn all you can about your illness &/or related illnesses. In this way you will be able to ask good questions and understand what you are being told. Build a great medical team: doctors, physiotherapists, etc.
The beginning is the most difficult.
Oh... and when you are told you are strong... ask them what they mean.. how are you strong? The answers are quite surprising. You will learn that you really are strong.... especially when you don't feel it!
I have found Connect very helpful.
All the best to you in navigating through your 'brave new world'.

Yes, yes! You are not alone and you are not crazy. This type of thing actually happens! For me it was being caused by a gluten intolerance I had developed but was unaware of. I was told that only those born with genetic celiac disease needed testing - but that’s another story. Anyway, I experienced heat, swelling and pain from the inflammation all the way through my GI tissues (from the mouth down) plus swollen gums, ears and sinuses.
Today is not a pajama day (although it is a pj pants day for most of the day!) for me but we all need to allow ourselves the guiltless, occasional break and self-care time necessary so that we can take care of what must be done other days.

You ARE the one making great comments! To add to all of this medical business, my life partner, my wife, passed this July. Since I don’t like living alone in my house, I have sold my house and
Am moving into a senior living
Facility. I know the stats: being isolated, alone, has many negative consequences. Bottom line: people keep you alive and vibrant.
Ray