Thanks so much for the reply!
No. My PCP sent me to a neurologist who wanted only to give me Gabapentin, even after I told him it wasn't working. I don't see him anymore.
Randy
Thanks so much for the reply!
No. My PCP sent me to a neurologist who wanted only to give me Gabapentin, even after I told him it wasn't working. I don't see him anymore.
Randy
Probably the best suggestion I can offer is what got me started looking for answers for what might help my neuropathy symptoms is to learn as much as you can about your condition, symptoms and what treatments that are available might help. A good place to start is the Foundation for Peripheral Neuropathy - https://www.foundationforpn.org/.
Did you have a nerve conduction test or other tests when you saw the neurologist, or did they just suggest a treatment of Gabapentin?
Probably the best suggestion I can offer is what got me started looking for answers for what might help my neuropathy symptoms is to learn as much as you can about your condition, symptoms and what treatments that are available might help. A good place to start is the Foundation for Peripheral Neuropathy - https://www.foundationforpn.org/.
Did you have a nerve conduction test or other tests when you saw the neurologist, or did they just suggest a treatment of Gabapentin?
Sorry you too are dealing with this. I've been living with it for nearly 5 years. I did see a neurologist who did nerve conduction study (which was awful) and he prescribed gabapentin, which made my lack of balance worse, but worse still, I developed the worst constipation I've ever had š which is now on-going. I'm 75 and have gone from being an active person who walked my dogs 1-2 hours every day to being nearly homebound. I'm sorry to be such a downer but I am worn out with it all. This is my first post.
Sorry you too are dealing with this. I've been living with it for nearly 5 years. I did see a neurologist who did nerve conduction study (which was awful) and he prescribed gabapentin, which made my lack of balance worse, but worse still, I developed the worst constipation I've ever had š which is now on-going. I'm 75 and have gone from being an active person who walked my dogs 1-2 hours every day to being nearly homebound. I'm sorry to be such a downer but I am worn out with it all. This is my first post.
Iām here.. the same things. Why? I already have TBIās on my brain 12 yrs ago, BUT I feel down in my garage on the wooden steps and hit my overtop my legs. After that, physically no longer of cutting the grass, falling down a lot daily, canāt walk after the 5 mins; pain & unbalanced standing up; falling down often.
Think about my future ā> this is good - real good. Because of my TBI, I canāt say of what is comingā¦ but next mth Iām going to this doctor - he helped me just 12 yrs ago after that accident - will work from the bottom of my back and āfix itā - even before my TBI accident. Heās fixing of what happened on the nevuers (sp?) and moving them back. That doctor does a 6 hr day and according to him I can walk. No more unbalanced, and no painā¦ ok, the pain will change to a diff way and walking - daily according to him will take the next 4 mths.
Iām happy. Yes, I exercise now and decades ago, but according to him, no exercise for the next 4 mths, but walking over walking - daily.
At first, I canāt walk without holding my hands and wheels - that I already walking to church, restaurants, stores. I hope after that will not use this 4 wheels walking.
Acciring to the dr tells of computers of pix when he holds the hand-made and looking as he moves. 6 hrs - wow.
Iāve been there with pains, falling down, canāt do this or that and on. 12 yrs of my accident turn my life from my head to the bottom of my feet (bible part) and this coming time will get back of standing up and walk.
Have you been tested for CIDP?
Thanks so much for the reply!
No. My PCP sent me to a neurologist who wanted only to give me Gabapentin, even after I told him it wasn't working. I don't see him anymore.
Randy
I take 400mg of R-Lipoic Acid 2ce a day - symptoms very improved after 2 weeks and no side effects.
Good Luck
Hello @randy23507, I would like to add my welcome to Connect along with @danawyn, @deluga and others. There are many discussions on the burning feet symptoms of neuropathy that you might also find helpful. Here are a few that you might find helpful:
--- Extreme pain in my feet. Neuropathy: https://connect.mayoclinic.org/discussion/extreme-pain-in-my-feet-neuropathy/
--- Small Fiber Neuropathy burning?: https://connect.mayoclinic.org/discussion/small-fiber-neuropathy-burning/
Probably the best suggestion I can offer is what got me started looking for answers for what might help my neuropathy symptoms is to learn as much as you can about your condition, symptoms and what treatments that are available might help. A good place to start is the Foundation for Peripheral Neuropathy - https://www.foundationforpn.org/.
Did you have a nerve conduction test or other tests when you saw the neurologist, or did they just suggest a treatment of Gabapentin?
I saw this mentioned before. Iām on day 2.
Thank you so much for your reply.
@randy23507
Yes you can add me.
No. I havenāt had a diagnosis.
Thank you!!
Sorry you too are dealing with this. I've been living with it for nearly 5 years. I did see a neurologist who did nerve conduction study (which was awful) and he prescribed gabapentin, which made my lack of balance worse, but worse still, I developed the worst constipation I've ever had š which is now on-going. I'm 75 and have gone from being an active person who walked my dogs 1-2 hours every day to being nearly homebound. I'm sorry to be such a downer but I am worn out with it all. This is my first post.
Me toooo!!!
I live in Ecuador and am an expat. WHere do you find this?
Painful walking and lost the feeling on you feet?
Iām here.. the same things. Why? I already have TBIās on my brain 12 yrs ago, BUT I feel down in my garage on the wooden steps and hit my overtop my legs. After that, physically no longer of cutting the grass, falling down a lot daily, canāt walk after the 5 mins; pain & unbalanced standing up; falling down often.
Think about my future ā> this is good - real good. Because of my TBI, I canāt say of what is comingā¦ but next mth Iām going to this doctor - he helped me just 12 yrs ago after that accident - will work from the bottom of my back and āfix itā - even before my TBI accident. Heās fixing of what happened on the nevuers (sp?) and moving them back. That doctor does a 6 hr day and according to him I can walk. No more unbalanced, and no painā¦ ok, the pain will change to a diff way and walking - daily according to him will take the next 4 mths.
Iām happy. Yes, I exercise now and decades ago, but according to him, no exercise for the next 4 mths, but walking over walking - daily.
At first, I canāt walk without holding my hands and wheels - that I already walking to church, restaurants, stores. I hope after that will not use this 4 wheels walking.
Acciring to the dr tells of computers of pix when he holds the hand-made and looking as he moves. 6 hrs - wow.
Iāve been there with pains, falling down, canāt do this or that and on. 12 yrs of my accident turn my life from my head to the bottom of my feet (bible part) and this coming time will get back of standing up and walk.