If exercise helps you then adding Acetyl L Carnitine may help even further. Research shows this is helpful for peripheral neuropathy including from damage such as yours. This helps to bring more oxygen to the body during exercise.
I saw a neurologist last week for EMG and no surprise I have idiopathic PN; big surprise, not!
He did suggest taking alpha lipoic acid and acetly-L carntine. Both of these reduce oxidative stress and improve nerve health. Does it work? Seems to help some people but but I figure it can't hurt to give it a try.
Has anyone else used this combination? Any suggestions as to dosage?
600mg alpha lipoic 3 time a day. I am starting with 300mg to see how it goes. I can react to supplements and medications so I want to be careful. That being said from all I've read 600-1800 mg is the range. But I also read that it had to be high enough, whatever that is for you, to make a difference, if it does.
600mg alpha lipoic 3 time a day. I am starting with 300mg to see how it goes. I can react to supplements and medications so I want to be careful. That being said from all I've read 600-1800 mg is the range. But I also read that it had to be high enough, whatever that is for you, to make a difference, if it does.
I take:
Lipoic Acid capsules 600mg twice daily after a meal.
B12 1000 mcg once daily.
D3 2000 IU (50mcg) daily.
Cannot tell if there is an improvement but above may slow advancement of feet neuropathy, all above per doctor.
I've posted this in a couple of places so forgive the replication, but I'm trying to get an answer. I have a question for anyone trying alpha lipoic acid. I just started using it and noticed that my urine has a fruity smell. I stopped taking it and it stopped. When I resumed the dosage it started again. So I know that is the cause. Anyone ever notice this?
I've posted this in a couple of places so forgive the replication, but I'm trying to get an answer. I have a question for anyone trying alpha lipoic acid. I just started using it and noticed that my urine has a fruity smell. I stopped taking it and it stopped. When I resumed the dosage it started again. So I know that is the cause. Anyone ever notice this?
I have been using it for about 1/2 a year now. It took a long time (months) to start working but appears to help now. Haven't noticed any smell or other abnormality with my urine
I have been dealing with peripheral neuropathy for almost 20 years but it has kicked up significantly in the last 3. I also have autonomic neuropathy, both due to Sjogren's syndrome. I take gabapentin and duloxetine but pain isn't the worst problem, numbness is in my case. I have been seeing rheumatologists for this but I get an opinion from a neurologist in a few days. Highly unlikely that anything can be done about either form of neuropathy. Hopefully you'll have better luck with the chemo induced version.
I got Neurapathy in my legs feet Started using rebuilder 300.
Works fantastic, just don't go over 4 So you don't overstimulate. That's where I am at right now.
Had to quit for a week. Start backup slowly and my water Bath 5 minutes in the morning. On my 4th day 96% Relieves pain it's supposed to rebuild What do you lost?
Google rebuilder 300.
For more info
I'll post something after the visit on Thursday. All I'll get is a baseline on how bad things are from an emg but possibly a treatment plan. I'm finding that rheumatologists don't like to treat the worst problems caused caused by Sjogren's due to the poor chances of improvement. I've tried two dmards, methotrexate and leflunomide, with little success and am hoping that this doc will give mycophenolate a shot. The worst thing about neuropathy when it passes a certain point is the gait problems, trouble walking. Anyway, thanks. I'll pass on what I find out.
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I saw a neurologist last week for EMG and no surprise I have idiopathic PN; big surprise, not!
He did suggest taking alpha lipoic acid and acetly-L carntine. Both of these reduce oxidative stress and improve nerve health. Does it work? Seems to help some people but but I figure it can't hurt to give it a try.
Has anyone else used this combination? Any suggestions as to dosage?
Just out of curiosity what was the milligrams the doctor suggested.
600mg alpha lipoic 3 time a day. I am starting with 300mg to see how it goes. I can react to supplements and medications so I want to be careful. That being said from all I've read 600-1800 mg is the range. But I also read that it had to be high enough, whatever that is for you, to make a difference, if it does.
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1 ReactionI take:
Lipoic Acid capsules 600mg twice daily after a meal.
B12 1000 mcg once daily.
D3 2000 IU (50mcg) daily.
Cannot tell if there is an improvement but above may slow advancement of feet neuropathy, all above per doctor.
-
Like -
Helpful -
Hug
3 ReactionsI've posted this in a couple of places so forgive the replication, but I'm trying to get an answer. I have a question for anyone trying alpha lipoic acid. I just started using it and noticed that my urine has a fruity smell. I stopped taking it and it stopped. When I resumed the dosage it started again. So I know that is the cause. Anyone ever notice this?
I have been using it for about 1/2 a year now. It took a long time (months) to start working but appears to help now. Haven't noticed any smell or other abnormality with my urine
Yes. I think it is from the Covid booster I received on April 2022. Has anyone else had this happen after a Covid vaccination?
Forgot to day I have been diagnosed with IPN. It began after the Covid vaccine.
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1 ReactionI got Neurapathy in my legs feet Started using rebuilder 300.
Works fantastic, just don't go over 4 So you don't overstimulate. That's where I am at right now.
Had to quit for a week. Start backup slowly and my water Bath 5 minutes in the morning. On my 4th day 96% Relieves pain it's supposed to rebuild What do you lost?
Google rebuilder 300.
For more info
Google Rebuilder 300 water Bath.
For information
Relieving your neuropathy
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Like -
Helpful -
Hug
1 Reaction