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Research on COVID 19 vax causing Essential Thrombocythemia?
Blood Cancers & Disorders | Last Active: Dec 6 7:09pm | Replies (88)Comment receiving replies
There is no research on this because doctors will not report it. My doctor said there is no research results on ET and Covid vaccines but when I asked if he was going to report my case--no reply. All patients would have to report their suspected issues to the proper government agency in order for them to know about the need for research.
I also had slightly high platelets for 25 years in the range of 375-480 but no doctor was worried until I thought about having surgery. I had put myself on daily low does aspirin 20 years ago. In 2017 my hematologist tested for JAK2 with negative results. I didn't have the back surgery or any other treatment.
No platelet changes until 2022 after I had three Covid vaccines in 2021. By June 2023 platelets hit 650 and had another JAK2 test which was positive this time, very unusual. All these high risk changes after the Covid vaccines even though stable for 30 years. Seeing hematologist every three months with no additional treatment other than daily aspirin and platelets remaining around 650. High risk since age 72 but have had no history of blood clots.
I'm sure there are more of these stories, but the data is not getting to the proper authorities.
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@mw2023, I wonder if Moderna and Pfizer have data. The initial Covid Vaccines were definitely rushed through due to urgency, but they continue to study, I hope, anyway. I am not conversant with their Covid Vaccine studies, but I have been a participant in a long-term study (2.5 years and 6 months to go) study with thousands of participants across the country for Moderna’s RSV vaccine. It’s pretty comprehensive with a weekly health check in, 6 month exams including blood draws and I am to report any change in health status. They do follow up!
I do wonder if they do the same with the Covid vaccines? Then one has to wonder if they would be forthcoming…but I am getting in the weeds here.
I do know that physicians in academia love to report medical anomalies. I worked in a large Children’s teaching hospital and they actually scramble to study and write papers and have a hand in new research. I don’t believe it is reticence on their part to “report” but perhaps low incidence?
We are all so different in how disease presents and how it impacts our bodies it is really difficult to identify cause and effect. You and your medical team have to decide what works for you. Others will have to do the same. I guess life would be dull if we were each a carbon copy of others.
Have a great weekend.