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Finding the right cancer care team

Blood Cancers & Disorders | Last Active: Mar 6 9:36am | Replies (16)

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@54321kl

I live in near the University of Michigan and was not referred to any specialist by my PCP as the wait was long for U of M. I have a physician friend who directs a family practice residency and he spoke to a former resident who provided the hematologist/oncologist name I have seen once. I am due to return but feel like there is a great amount of diversity in the care people receive and want to be sure I have care that includes an integration of opinions and treatments including diet, exercise, vitamins and if needed traditional care. I am new to this in the last 6 months and have no symptoms. I am willing to travel if needed.

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Replies to "I live in near the University of Michigan and was not referred to any specialist by..."

Hello,
I have Polycythemia Vera and see a local Oncologist and an MPN Specialist at the University of Michigan. I don’t know what your specific diagnosis is but I encourage you to see a specialist that is trained and treats specifically within your diagnosed condition. My local hematologist/Oncologist is good but not specifically trained and studied in MPN’s. I feel confident that by working both with my MPN Specialist and local doctor is the best method of treatment for me as I live about an hour from UofM. They work in conjunction to be sure I’m getting all bases covered.

If you would like to get a second opinion from Mayo Clinic experts, you can self-refer. To submit a request, start here: http://mayocl.in/1mtmR63

I agree that care is not equal at all facilities. Here’s more information about chronic lymphocytic leukemia care at Mayo Clinic https://www.mayoclinic.org/diseases-conditions/chronic-lymphocytic-leukemia/care-at-mayo-clinic/mac-20352437

In my opinion, what stands out about care at Mayo is the multidisciplinary team of specialists. See more here:
- CLL: Mayo Clinic's approach to diagnosis
https://connect.mayoclinic.org/blog/hematology/newsfeed-post/cll-mayo-clinics-approach-to-diagnosis/
CLL