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Essential Thrombocythemia: Making treatment decisions

Blood Cancers & Disorders | Last Active: Sep 15 11:57am | Replies (160)
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@niloufar

Hello,
Regarding your concern about Covid Vaccine, My mom's platelet level raised 200,000 more after getting Covid Vaccine recently. The condition was plateaued for 3 years and we were so happy, but after these vaccinations it jumped up! so be cautious about taking Routine Flu ,Covid, and RSV Vaccine. Besides, I heard if you take Hydroxyurea, you need to take it all life long. I am wondering if you can discontinue it after reaching to safe level platelets.
I wish the best for all!

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Replies to "Hello, Regarding your concern about Covid Vaccine, My mom's platelet level raised 200,000 more after getting..."
0612judy | @0612judy | Feb 22 12:33pm

Have been on hydroxyurea for 7 years. I cut my dose to half for the first 5 years but then my platelets went up and up. I cut back occasionally with doctor guidance when my red and white cells dip too low but always need to go back on as my platelets shoot up again. Sorry.

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