@allstaedt57 that must be disheartening to feel as though your husband was misdiagnosed. It makes so much difference to have physicians you trust to monitor and treat your conditions.
When I was working in a Children’s hospital through the height of COVID, I was worried about being immunocompromised so I did a deep dive in the research. I also wondered about any connection between autoimmune disorders and MGUS. This study affirmed what my hem/onc told me but he was new to me still. He said that MGUS was not in itself an autoimmune disorder and there is no evidence to suggest that autoimmune disorders make one more susceptible to MGUS. I have Celiac as well and I wondered if there might be a connection.
https://www.myeloma.org/videos/autoimmune-diseases-are-not-associated-mgus-results-population-based-istopmm#:~:text=Monoclonal%20gammopathy%20of%20undetermined%20significance%20(MGUS)%20is%20a%20precursor%20of,among%20patients%20with%20autoimmune%20diseases.
You are certainly correct that it is different for everybody. It’s amazing to me how differently we all experience this blood disorder. I hope you have a good hematologist/oncologist who you can trust who has a lot of experience treating multiple myeloma. We all hope that our MGUS does not progress, and the statistics are on our side, but it’s like going to the grocery store ahead of a blizzard… Good planning!
Patty