Post treatment depression

Posted by zzonner @zzonner, Dec 23, 2023

Good morning warriors. Things have gone extremely well for me through the treatment, and for that I truly feel blessed. I am 5 months post op and my CT scan shows I am cancer free. I am 4 months into Immunotherapy which is also proving to be uneventful. Other than some fatigue, which may be because I just turned 70, I feel wonderful. I have never been one to experience depression so I am not quite sure what wrong with my mental state. I have been reading up on post treatment depression and think it may be worth exploring. My family and I have been 100% focused on fighting this battle daily, for 10 months and now that things have slowed down, I feel a void. My surgeon says to just focus on living my life but that seems overly simplistic. Has anyone else experienced this after void? I am thinking of getting some books or perhaps seek therapy but have always been one to solve my own problems. It's not overwhelming, just plain irritating. I don't want to sound ungrateful for my situation but want to get on with things. Thanks.

Interested in more discussions like this? Go to the Esophageal Cancer Support Group.

@henrysilverio12

There are two strains of marijuana; sativa and indica. Sativa is known for its euphoric, energetic “high”. Indica is grown all over now but used to be grown in hawaii, afghanistan, nepal, and many others. The indica is “heavier” and most people fall asleep when they use it. In Montana that is not a problem. Depending on your state if might be illegal.

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I live in Texas so I’m out of luck on that option. Thank you for the info tho

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That is too bad, because that is the main thing that helps me sleep.

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@sepdvm

Merry Christmas zzonner! The holidays come and go with the same joy as precancer when you can finally put the diagnosis and treatment side effects on a back burner. It takes a while. My first surgery was over 11 years ago at Mayo Clinic Rochester. Followup chemo/radiation closer to home at U of Michigan ( tough for an Ohio State grad ) started a month after surgery. The end of treatment left me feeling like I was teetering on the edge of an abyss, with nothing there to catch me. Suddenly we weren't actively fighting cancer any more, but just waiting for it to show itself again. Luckily I knew about an immune augmentation clinic in the Bahamas that had a darn good record in prolonging lives of people with cancer. I started that shortly after the end of radiation and once again I felt I was doing everything I could to prevent a recurrence. Diet and lifestyle changes and simply working on my own attitude of gratitude have all helped. I'm quite the optimist so that helps, and this has gotten me through 4 metastases and 3 more surgeries. At 70, you're never sure if the slowing down is due to age or your chronic illness and treatment but you listen to your body and keep kicking the can down the road. I know others have sought therapy to get through the post treatment period, but I just did some reading. Favorite books which helped me regain my positive attitude: How Not to Be My Patient by Ed Creagan MD, a former palliative care physician at Mayo with many great suggestions for life changes, Radical Remissions by Kelly Turner, and her other book Radical Hope. For me, reading about others who have gone the cancer route and continue to live a good life helps my attitude a lot. The gratitude exercise of waking each morning and thinking of 4 things you are grateful for then again as you go to bed what 4 things happened that day to be thankful for. Just enjoying a quiet cup of coffee in a peaceful setting can be one of them. Congratulations on having NED right now! That is certainly worth celebrating. It takes time and some work on your part to get to your new normal where you can mostly enjoy life and place that cancer diagnosis in a dusty corner until your next scan blows the dust off again. THINK POSITIVE and never give up hope. .....Susan

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Thanks for this, Susan. I'm new to the forum and the disease. I was diagnosed w/ adenocarcinoma, stage 1b in October 2023 (lower esophagus).

Instead of going straight into surgery, I chose a short-term (8 weeks) chemo and radiation stint suggested by my oncologists. This reduced tumour size remarkably, but since my entire esophagus was going to be removed, this radiation/chemo stint was designed (as I understand it) to attack any potential, unseen, small, groups of cancer cells either floating around my body looking for a place to land and start their violence, or have already done so - but either way need to be liquidated!

As far as the original poster's outreach with respect to depression coming on after the high-stakes efforts are in a comfortable lull... I can relate.

My sense is that it's a kind of PTSD.

I've had my esophagectomy now, it was 6-weeks ago. Recovery has been pretty tough and I had to be readmitted for a week with uncontrollable vomiting, but I'm home again and getting it under control.

But this has of course been a momentous event in my life and required the piling on of new resources and new people at a near constant rate. Decisions all carried such terrible import and the veil between life and death became so thin as to have become unseen at many times.

But I can see the teeny light at the end of the tunnel now and distant though it may still appear to be, it's enough that it occurs to me that the emotional, and psychological pace that I have been keeping is likely unsustainable, even though I got used to living that way.

As a result I feel a genuine sense of 'let down' over the idea that my job is to return back to the 'grind', back to the anonymity of a worker ant. Cancer made life so simple in so many ways, and as life's complexity returns, if it returns (I'm not in the clear by any means), I can forsee myself having to make just as large an adjustment "coming down from cancer" as I did going up. Perhaps simply acknowledging this as a huge job, separate from the others, can be enough to move one on from depression to... frustration? lol.

I hope my rambling hasn't offended any rules or good taste. It is difficult to discuss this topic and I am grateful to you for doing so. Kudos mate, w/ love from Canada's West coast.

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You are a hero for those of us that have yet to go through what you have done. I hope you know that God bless you and keep up the good fight

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@rontucker

Has anyone had trouble sleeping during and after treatments? I haven’t slept more than 2hrs at a time in the past 5 months and was curious if it’s a normal side effect for most cancer patients. I’ve tried melatonin,NyQuil and THC eatibles and nothing has helped so other advice would be greatly appreciated. I think if I could get some quality sleep time in it would greatly help my recovery.

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I have traveled this road also. Look into Magnesium supplementation as it can be low and interfere with sleep. I found some relief with a supplement that is made into a drink or a tea from the Nuun product line. Nuunlife.com and the product is called Rest. I also use an essential oil diffuser with lavender beside the bed. There are lavender sprays that also help. I am lucky that taking 2 Tylenol at bedtime helps my stay asleep also. Using several things at once is more likely to help you than just trying one at a time. I also use 2 MG of Melatonin occasionally. More is not better with Melatonin. Good luck on this issue. Getting 4 hours of uninterrupted sleep is such a luxury.

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@jumpin138

You are a hero for those of us that have yet to go through what you have done. I hope you know that God bless you and keep up the good fight

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Welcome, @jumpin138. I see from your bio in your profile that you're a musician. What's your "ax"?

Have you recently been diagnosed with esophageal cancer? Finished treatment? How are you doing?

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@colleenyoung

Welcome, @jumpin138. I see from your bio in your profile that you're a musician. What's your "ax"?

Have you recently been diagnosed with esophageal cancer? Finished treatment? How are you doing?

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I am a bass player and singer. I have used Fender and Alembic basses but good old Fender Precision is my favorite.
I was recently diagnosed with Dysphasgia caused by DISH and I had a bone spur removed from my throat. Because it involves my esophagus I wash interested in other people going through throat challenged. I hope you are healing.

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@jumpin138

I am a bass player and singer. I have used Fender and Alembic basses but good old Fender Precision is my favorite.
I was recently diagnosed with Dysphasgia caused by DISH and I had a bone spur removed from my throat. Because it involves my esophagus I wash interested in other people going through throat challenged. I hope you are healing.

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Thanks for sharing a bit more. You're certainly welcome here. You may be interested in these relevant discussions about

- Dysphasigia https://connect.mayoclinic.org/search/discussions/?search=Dysphasgia
and
- DISH (diffuse idiopathic skeletal hyperostosis) https://connect.mayoclinic.org/search/?search=%22DISH%22

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@colleenyoung

Thanks for sharing a bit more. You're certainly welcome here. You may be interested in these relevant discussions about

- Dysphasigia https://connect.mayoclinic.org/search/discussions/?search=Dysphasgia
and
- DISH (diffuse idiopathic skeletal hyperostosis) https://connect.mayoclinic.org/search/?search=%22DISH%22

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Thank you so much for the info. Thank you for allowing me to contact you all. I have much to learn and I hope i can share my experiences with the people in this group. Together we can help each other face the uncertainties that lay ahead. Thank you for your support.

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Exercise and eating habits are vitally important to getting over the post treatment depression. I, too, just turned 70. I am 4 years post treatment except for the 1 year of immunotherapy. Immunotherapy was a non-event for me, just like you, but it sure beat sitting around and just waiting. Being proactive and working out and walking help me to know I am beating the silent killer. I also bought a couple of 3D printers and Lasers just to keep my mind busy. I almost never think of the issues I had adjusting and live life like I still have all my body parts, except I don’t stuff myself at meals and I do sleep with my upper body at an angle. I am a side sleeper and had to adapt. Now it is a non-issue. And we just bought two widescapes yesterday to keep us active in winter. (google them. they are like snow scooters). Last year three of us guys took a ski trip to British Columbia. It was amazing and I was able to keep up. You will feel better with time, I promise. And once the new behaviors become habits you will have it made.

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