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Does anyone else have MGUS?

Blood Cancers & Disorders | Last Active: 1 day ago | Replies (862)
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@jeannie215

Hi. Thank you so much for all that information. I really appreciate it. Mild sedation was not offered to me. They said they were just localize the area.

Do you have MGUS as well? I’m really hoping that I can figure out what is causing my hip pain. The hip pain radiates to my knees and down my legs. More prevalent at night.

Thank you again!!
Jeannie

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Replies to "Hi. Thank you so much for all that information. I really appreciate it. Mild sedation was..."
Lori, Volunteer Mentor | @loribmt | Feb 21 3:01pm

Hi Jeannie. You have a number of tests coming up so I do hope you find some answers for your hip pain and whether it’s related to your MGUS or not. As you’ve seen in the forum, quite a few MGUS patients have symptoms that doctor’s don’t feel are related but the correlation seems pretty coincidental. Many mysteries with blood diseases.

To answer your question, no, I didn’t have MGUS. My special treat was Acute Myeloid Leukemia…which comes with its own level of excitement. ☺️ I was dealing with that exactly 5 years ago right now, and so thankful it’s behind me. Lots of chemistry poured into me and a bone marrow transplant has brought me to a durable remission!

Let me know how your tests come out! It can take a week or so for the complete biopsy results to be reported.

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