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Anyone take new drug Camzyos (mavacamten) for HCM?

Hypertrophic Cardiomyopathy (HCM) | Last Active: 3 days ago | Replies (736)
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@karukgirl

Hello @manuelpo, and Welcome to Mayo Connect!
I'm happy you were able to find the Camzyos group and ask questions about coverage. I have zero information I can share, as I had to have open heart surgery for my HOCM, but hopefully another member can advise you on where to seek information about insurance coverage for this drug. I have read it is crazy expensive without being on the trial.
How long have you had HOCM? Is your cardiologist able to help you with insurance information?

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Replies to "Hello @manuelpo, and Welcome to Mayo Connect! I'm happy you were able to find the Camzyos..."
manuelpo | @manuelpo | Feb 21 11:20am

Hi Debra,

Blessings to you on your open heart surgery. I was born with HOCM. My first doctor appointment is this coming March. I know the camzyos cost $8,500 per month. I will ask my Cardiologyst insurance info but my 30 year experienced Insurance Broker told me I have to have a life event to qualify to change my current health insurance that does not cover this new cardiologyst. My insurance covers the previous cardiologyst that does not treat advanced 2 centimeters HOCM in my heart. Thank you for your response.

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