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MGUS Symptoms: What symptoms did you experience?
Blood Cancers & Disorders | Last Active: May 15 3:30pm | Replies (72)Comment receiving replies
My two cents:
Personally, yes to occasional vertigo, ongoing mild neuropathy, and I fight the fatigue. I find if I push through the fatigue I feel refreshed after a bike ride or trail hike. Maybe it's the increase of oxygen into the muscles? Naps do happen though seldom.
My husband had experienced all of that plus a rash that was incessant and itchy. As I have mentioned on other posts, I believe he was under diagnoses and while we were told and thought it was only MGUS, I now suspect it was SM. When he was suffering with this significant rash, whether it was during MGUS or SM, we went to a Dermatologist, Allergist, the lame Oncologist, and our General Practitioner and none of them knew what to do with it or the cause. So, I am watching for his type of rash.
My hearing is fine, but wondering about my changing left eyesight.
MGUS is some form of an auto-immune reaction, but different for everyone though so who knows.
Replies to "My two cents: Personally, yes to occasional vertigo, ongoing mild neuropathy, and I fight the fatigue...."
@allstaedt57 that must be disheartening to feel as though your husband was misdiagnosed. It makes so much difference to have physicians you trust to monitor and treat your conditions.
When I was working in a Children’s hospital through the height of COVID, I was worried about being immunocompromised so I did a deep dive in the research. I also wondered about any connection between autoimmune disorders and MGUS. This study affirmed what my hem/onc told me but he was new to me still. He said that MGUS was not in itself an autoimmune disorder and there is no evidence to suggest that autoimmune disorders make one more susceptible to MGUS. I have Celiac as well and I wondered if there might be a connection.
https://www.myeloma.org/videos/autoimmune-diseases-are-not-associated-mgus-results-population-based-istopmm#:~:text=Monoclonal%20gammopathy%20of%20undetermined%20significance%20(MGUS)%20is%20a%20precursor%20of,among%20patients%20with%20autoimmune%20diseases.
You are certainly correct that it is different for everybody. It’s amazing to me how differently we all experience this blood disorder. I hope you have a good hematologist/oncologist who you can trust who has a lot of experience treating multiple myeloma. We all hope that our MGUS does not progress, and the statistics are on our side, but it’s like going to the grocery store ahead of a blizzard… Good planning!
Patty
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Hi,
I was diagnosed this past January with MGUS. I do have the fatigue which is challenging bc I often work 16 hour days. Sometimes when I get home, I crash in my clothes with shoes still on. I do have hip pain and some arm pain. Still trying to figure it all out. Good luck.
Jeannie