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CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Autoimmune Diseases | Last Active: May 2 12:23pm | Replies (261)
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@nemo1

I have severe chronic polyradiculopathy (legs/lumbosacral and neck) with neuropathy in right arm. I have not had a biopsy to see if I have sfn. So, I’m not sure where to look. I have appointments with nm doctors and pain Management and am not certain what I should be asking or telling them. I’ve been having such pain and weird symptoms. I need help.

I”m not sure what I’ve got. I have some neuropathy and radiculopathy but dont have a dx for what has caused the polyradiculopathy. Its such a long story.

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Replies to "I have severe chronic polyradiculopathy (legs/lumbosacral and neck) with neuropathy in right arm. I have not..."
Becky, Volunteer Mentor | @becsbuddy | Feb 21 7:37pm

@nemo1 I’m glad you were able to get appointments with those doctors. I included a link to the Autoimmune Association’s ‘tips on diagnosis.’
https://autoimmune.org/resource-center/diagnosis-tips/
You should get some good ideas from the site. You may also want to start a list of what hurts and what makes it better or worse, is the pain constant or occasional. List your weird symptoms. Do foods make anything worse. What makes things better. How long you’ve had these symptoms/pain. Everything you can think of. Write it down, grouping it be subject. As you do all this, questions will come to you.
I hope this helps some
Can you start working on this tomorrow so you’ll be ready for your appointments?

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cgrogers | @cgrogers | Feb 23 5:09am

Wondering how you were diagnosed and by what kind of doctor? I may be joining this chat late so may have missed that information but if you haven’t considered this you should see a neuromuscular Neurologist who can do and examination, nerve conduction study and an EMG to determine what type of neuropathy you have. Once you have a diagnosis, then there’s more likelihood of a successful treatment.

In my particular situation, it took a long time to get a diagnosis because the condition (CIDP) hadn’t progressed to the point where the symptoms were present.

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