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← Return to PN: From Anger to Acceptance
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@njed
Hi Ed,
I never really answered your question about Dilantin treating neuropathy. I don't think the Dilantin is used much anymore for that purpose. Gabapentin and the carbamazepines, Tegratol & Carbatrol are much more common although I don't know anyone who has been on Carbamazepine although I take Carbatrol 1,000 mg a day. It certainly doesn't do anything for numbness, and I no longer have the pains, my condition worsened and the numbness took over because of more dying nerve gibers. I think seizure meds are wicked and it's all I can do to take them. On day I lost control and threw them across my kitchen, but I gathered them up and took them dirt all. Not bad for taking them for 57 years and only losing it once.
Do you ever have seizures anymore? My last round was Aug of 2019. I had 1 at home and 5 in the hospital.
Take care of yourself Ed,
Jake
Replies to "@njed Hi Ed, I never really answered your question about Dilantin treating neuropathy. I don't think..."
I’m on Tegretol! I wrote a long post about why that is. You can find it in this forum under my name. It’s an interesting story.
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Jake - So sorry to hear about your last round. I have not had any seizures for years. The Dilantin, like it or not, is holding me and working. Back in the late 60's, I was involved in a motorcycle accident, someone turned left in front of me, hit the car, flew over the car and landed 15 feet on the other side of the car after hitting a height of 7 feet in the air. Back then, docs feel the accident was likely cause of seizures which started in 1970 when I was in the military. I thought I was lucky with just a banged-up shoulder. Then, the fun started. Ed