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MGUS Symptoms: What symptoms did you experience?

Blood Cancers & Disorders | Last Active: May 15 3:30pm | Replies (72)
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@mariannalena

Hello, I was recently diagnosed with MGUS. I have had a series of curious, unfortunate events since August 1st (Now Feb. 20th). I woke up from a nap with severe vertigo. After three days, I completely lost my hearing in one ear. Specialists called it an idiopathetic, neurosensory hearing loss. That was a mouthful, but compared to saying what MGUS stands for, simple enough. Since then, I have had COVID-19, the flu, and a torn rotator cuff. I was convinced my immune system must be shot to hell and visited my M.D. who suspected MGUS. Of course, after the initial fear of MM, MGUS seemed like a runny nose. Since then, I have researched as much as possible and found that hearing loss is associated with MGUS as well as the overwhelming fatigue I experience every day in the late afternoon. (Now I have an excellent excuse to nap! Has anyone else had similar experiences? My oncologist feels that the "mystery" virus that caused my hearing loss could've triggered the MGUS. Any thoughts?

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Replies to "Hello, I was recently diagnosed with MGUS. I have had a series of curious, unfortunate events..."
Allstaedt57 | @allstaedt57 | Feb 21 7:42am

My two cents:

Personally, yes to occasional vertigo, ongoing mild neuropathy, and I fight the fatigue. I find if I push through the fatigue I feel refreshed after a bike ride or trail hike. Maybe it's the increase of oxygen into the muscles? Naps do happen though seldom.

My husband had experienced all of that plus a rash that was incessant and itchy. As I have mentioned on other posts, I believe he was under diagnoses and while we were told and thought it was only MGUS, I now suspect it was SM. When he was suffering with this significant rash, whether it was during MGUS or SM, we went to a Dermatologist, Allergist, the lame Oncologist, and our General Practitioner and none of them knew what to do with it or the cause. So, I am watching for his type of rash.

My hearing is fine, but wondering about my changing left eyesight.

MGUS is some form of an auto-immune reaction, but different for everyone though so who knows.

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