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MGUS Symptoms: What symptoms did you experience?

Blood Cancers & Disorders | Last Active: May 15 3:30pm | Replies (72)
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@marshaberi

I was diagnosed with
MGUS 7 years ago and
after l did some research l became afraid to follow up in a year as my Oncologist requested. Now I’m having severe pain in my entire body including my hips. I have had Transverse Myelitis for 23 years, and I would just attribute the increase in pain to that disease. But in the past several months I have noticed abnormal labs with a decrease in various blood cells. Now I’m really afraid to go back to the Oncologist. Will l need another bone marrow biopsy? What will they find?

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Replies to "I was diagnosed with MGUS 7 years ago and after l did some research l became..."
jeannie215 | @jeannie215 | Feb 21 8:37am

Do you think the hip pain could possibly be from the MGUS? I have hip pain as well. I thought i may have had an auto immune disease...as of now the rheumatologist isn't sure if its fibromyalgia, osteoarthritis of the hips or due to the elevated protein in my blood causing inflammation hence pain but I'm not too sure about that. I'm still trying to figure it all out.

Please go back to the oncologist. Don't be afraid of the results...you have to be proactive. Good luck.

Best,
Jeannie

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Lori, Volunteer Mentor | @loribmt | Feb 21 3:07pm

Hi @marshaberi, Welcome to Connect. The condition of MGUS can change over time. So it is a good idea to have a followup with your oncologist. Please don’t let your fear of the unknown prevent you from seeing your doctor. This can be a treatable condition but to do so, you need to be seen and have a clear diagnosis.

You mentioned that you’ve had labs in the past several months with a decrease in various blood cells. Are these tests being ordered through your primary care doctor? Is this doctor not concerned with the change in your labs?

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