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Primary pulmonary amyloidosis light chain diagnosis

Lung Health | Last Active: Feb 23 6:35am | Replies (5)

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@redhead63

I would definitely go to the Mayo Clinic because this is such a rare and dangerous disease!

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Replies to "I would definitely go to the Mayo Clinic because this is such a rare and dangerous..."

The biopsy slides were sent to the Mayo Clinic after local pathology department could not identify cells. Oncologist treated with chemo that they use for multiple myeloma but stopped it after four months as it wasn't effective. Started on immunotherapy for two months to see if that works. If not no other treatment is available. Will ask pulmonary doctor at tomorrows visit if that’s an option. Very hard to find any information on this disease.