← Return to CLL treatment that concentrates in shrinking the spleen without undergoing chemo

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@colleenyoung

Welcome to our CLL/CML group on Connect, @jzier.
You can easily search for open clinical trials at Mayo Clinic using this link http://www.mayo.edu/research/clinical-trials I like this webpage from Cancer Research UK for details about biological therapies (immunotherapy) for CML http://www.cancerresearchuk.org/about-cancer/type/cml/treatment/biological-therapies-for-chronic-myeloid-leukaemia Keep in mind that it is a UK site so some brand names may differ in the US.
Has your oncologist suggested any other clinical trials that may be an option?

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Replies to "Welcome to our CLL/CML group on Connect, @jzier. You can easily search for open clinical trials..."

Hi Colleen< br>Thank you for your response.
Please note that my illness is CMML.
The leukemias that you list - CLL & CML are different illnesses. Do you have info that refers to CMML?

My apologies @jzier. Here's info specific to chronic myelomonocytic leukemia (CMML) from Cancer Research UK http://www.cancerresearchuk.org/about-cancer/cancers-in-general/cancer-questions/chronic-myelomonocytic-leukaemia-cmml This article from the National Cancer Institute for health professionals http://www.cancer.gov/types/myeloproliferative/hp/mds-mpd-treatment-pdq

Currently there is a phase I/II clinical trial open for enrollment at Mayo Clinic for CMML. See details including eligibility criteria here: http://www.mayo.edu/research/clinical-trials/cls-20149895

Thank you for your speedy response. Can you also tell me if there are any specialists dealing with this illness at Mayo?<br><br>

@jzier, please contact the appointment office to inquire about CMML specialists at Mayo. Here are the numbers and online form http://mayocl.in/1mtmR63

Hi Colleen -- My diagnosis is CMML - chronic myeloid monocytic leukemia. It is different from CML and CML.
It is a rare diagnosis so it is difficult to get info on possible treatments, etc. My oncologist is waiting for a trial
Study called ABT 199. But we have been waiting for months. Meanwhile I am not on any treatment and being
supported with blood tranfusions. I am concerned that the illness is probably progressing. My white counts have
been going up. My Dr says don't worry about. But, of course, I am. Any ideas?

Can you recommend a doctor at Mayo who specializes in CMML?
Thanks
Jzier

Hi @jzier, I can understand your concern. Waiting is very difficult. Please contact the Mayo Clinic appointment office to inquire about CMML specialists at Mayo. Click this link for the phone numbers at all 3 of our campuses in Minnesota, Florida and Arizona http://mayocl.in/1mtmR63