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CLL treatment that concentrates in shrinking the spleen without undergoing chemo

Blood Cancers & Disorders | Last Active: Mar 5, 2023 | Replies (38)
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@gmack

@nellieblue I have had cll for 71/2 years. In Nov 2014 I started in a clinical trial. At that time my spleen was enlarged and my lymph nodes were swollen. I was given a targeted therapy in a series of infusions (no side effects) called rituximab and since then three pills every day called ibrutinib. The swelling in my spleen and lymph nodes went away. My white cell count goes between 12 to 14 thousand. At one point before treatment it was over 200 thousand. I am not sure if these drugs are FDA approved.I hope this helps you. gmack

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Replies to "@nellieblue I have had cll for 71/2 years. In Nov 2014 I started in a clinical..."
bjsdancer | @bjsdancer | May 28, 2016

Hi Nellieblue, My husband has been on Tamsulosin for his Myelofibrosis two capsules a day for about six weeks. Spleen very enlarged, lots of weight loss and fatigue. Spleen has not reduced in size so he is going to be put on ruxolitnib if we can get financial aid. The cost of this drug is out of sight. Will also ask our doctor about ibrutinib which you say has helped you. White cell count was 30,000 but that has gone down.

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